Parenting a Child with a Rare Disease: Finding Community, Dignity, and Support
Dam Parenting28 Helmi

Parenting a Child with a Rare Disease: Finding Community, Dignity, and Support

Parenthood doesn’t always unfold the way we imagine.

In this Rare Disease Day special, Sarah shares her family’s lived experience of parenting a child with a rare disease — from diagnosis and grief to resilience and connection. This conversation explores how labels can become tools for finding support, not reasons for hiding, and how A Different Story was created as a community for parents in the Netherlands to be seen, heard, and held.

This episode may feel heavy for some — and deeply affirming for others. It is shared with care, dignity, and the belief that no one should navigate this journey alone.


Jaksot(190)

Joy as a Parenting Resource: Why It Matters More Than We Think with Eva

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When Your Career No Longer Fits Your Life After Parenthood with Ellen

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Welcome to Dam Parenting

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Day 12 of parenting abroad episodes

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This episode dives into what true compromise really looks like in relationships. Dr. Naomi Gibson shares tools for communication, teamwork, and emotional honesty — helping couples move from tension to...

29 Joulu 202537min

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