Sticky blood, teddies and teens — Talking to children about their bleeding disorder
When it comes to managing family life with a child who has a bleeding disorder, parents aren’t just caregivers – they’re organisers, advocates and educators. Alongside managing their child’s condition...
31 Maalis 34min
Banana sap, mangos and factor IX — a Ugandan haemophilia B journey
Morris Okello lives in Northern Uganda. In this episode of Haemcast, he tells Dr Kate about the childhood experiences that eventually led to him being diagnosed with haemophilia B. As well as describi...
9 Loka 202525min
Quality of life in the balance: Helen Tate on living with Factor V deficiency
Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million people....
21 Elo 202522min
Looking back on Terence's life: Haemophilia then and now, with Kate Khair
Following our six-part mini-series 'Reflections on a life with severe haemophilia', with Terence O'Rourke, Haemnet's Dr Kate Khair considers some of the things that have changed in haemophilia care du...
30 Heinä 202518min
Reflections on a life with severe haemophilia. Part 6: Decision-making and teamwork
The final part of our mini-series featuring Terence O'Rourke, in which he reflects on living with severe haemophilia A.In this episode, Terence discusses his approach to making decisions about treatme...
2 Heinä 202514min
Reflections on a life with severe haemophilia. Part 5: Treatment impacts, life changes and hepatitis C
In part 5 of Terence O'Rourke's story, he again reflects on his working life and how this was impacted by both his haemophilia and its treatment.He discusses his approach to and choices about treatmen...
12 Kesä 202513min
Reflections on a life with severe haemophilia. Part 4: The arrival of Factor VIII and an evolving career
In part 4 of our mini-series in conversation with Terence O'Rourke, he reflects on changes in treatment for haemophilia and the arrival of Factor VIII. Terence describes some of the prejudice he expe...
29 Touko 202512min
