Sticky blood, teddies and teens — Talking to children about their bleeding disorder
Haemcast31 Maalis

Sticky blood, teddies and teens — Talking to children about their bleeding disorder

When it comes to managing family life with a child who has a bleeding disorder, parents aren’t just caregivers – they’re organisers, advocates and educators. Alongside managing their child’s condition, they have to help them understand it too.

In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, parents discuss how they go about talking to their child about their bleeding disorder – helping them understand where it comes from, what it means for their day-to-day lives, and why their treatment is important.


For more information about Local families with bleeding disorders, visit ⁠www.bleeding-disorders.co.uk

CREDITS

Participants: Hannah Brunning, Mark Salmen, Jackie Perkins

Interviewer: Kathryn Jenner

Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠⁠⁠bensound.com⁠

Jaksot(40)

"Everything's new with haemophilia" — Treatment choices and changes

"Everything's new with haemophilia" — Treatment choices and changes

When making choices about treatment for a bleeding disorder, for a child or for yourself, what matters most? In this episode of Haemcast’s special series in collaboration with Local families with blee...

30 Huhti 29min

Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard

Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard

The first in a special Haemcast series in collaboration with Local families with bleeding disorders, exploring aspects of family life.In this episode, members of Local families with bleeding disorders...

5 Maalis 34min

Banana sap, mangos and factor IX — a Ugandan haemophilia B journey

Banana sap, mangos and factor IX — a Ugandan haemophilia B journey

Morris Okello lives in Northern Uganda. In this episode of Haemcast, he tells Dr Kate about the childhood experiences that eventually led to him being diagnosed with haemophilia B. As well as describi...

9 Loka 202525min

Quality of life in the balance: Helen Tate on living with Factor V deficiency

Quality of life in the balance: Helen Tate on living with Factor V deficiency

Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million people....

21 Elo 202522min

Looking back on Terence's life: Haemophilia then and now, with Kate Khair

Looking back on Terence's life: Haemophilia then and now, with Kate Khair

Following our six-part mini-series 'Reflections on a life with severe haemophilia', with Terence O'Rourke, Haemnet's Dr Kate Khair considers some of the things that have changed in haemophilia care du...

30 Heinä 202518min

Reflections on a life with severe haemophilia. Part 6: Decision-making and teamwork

Reflections on a life with severe haemophilia. Part 6: Decision-making and teamwork

The final part of our mini-series featuring Terence O'Rourke, in which he reflects on living with severe haemophilia A.In this episode, Terence discusses his approach to making decisions about treatme...

2 Heinä 202514min

Reflections on a life with severe haemophilia. Part 5: Treatment impacts, life changes and hepatitis C

Reflections on a life with severe haemophilia. Part 5: Treatment impacts, life changes and hepatitis C

In part 5 of Terence O'Rourke's story, he again reflects on his working life and how this was impacted by both his haemophilia and its treatment.He discusses his approach to and choices about treatmen...

12 Kesä 202513min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
tiedenaiset-podcast
psykopodiaa-podcast
voi-hyvin-meditaatiot-2
vakeva-elama-viisaampi-mieli-vahvempi-keho
rss-pitaisko-erota
rss-kuumilla-aalloilla
puhu-muru
rss-kyykkya-ja-kuoharia
paaasia-podcast
fitnessvastaanotto
rss-pt-paahtio
meditaatiot-suomeksi
selviytyjat-tarinoita-elamasta
rss-uplevel-by-sonja-hannus
onnen-kuplia
terapiassa
rss-nautinto
rss-vapaudu-voimaasi
rss-rakas-mielenterveyteni