pt3: squish squash brick wall
I AM MADELINE10 Maalis

pt3: squish squash brick wall

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get into the hyperbaric chamber we're paying impossibilities that were just going to make me worse. The kind of long-term pain especially the fibromyalgia colliding with the dyslexia and the architectural pain which creates a special kind of hell. And add to that the new motor on my scooter creating a high-pitched war which collides with the sound sensitivity portion of ME and fibro. And on top of that because of forces outside of his control haven't been able to see my physio for almost 6 weeks. And I haven't had this extent of pain nausea and pain nightmares since the COVID lockdown. now that of course got way worse because it was months. But even being three to four weeks late for physio means i have quite the cacophony of pain, amplified exhaustion, and loss of emotional resiliency

Jaksot(141)

Easter musings

Easter musings

it's Easter morning, and I talk about some of the good things that have happened but also as per usual document the obstacles that are ever present I talk about this housekeeping GoFundMe a friend set...

5 Huhti 34min

under pressure

under pressure

I was trying to figure out what to call this and I think that David Bowie Queen song under pressure pretty much describes it I think. So I'm continuing to try to document the insanity of the measure o...

24 Maalis 38min

Sick Times republish of my op-ed!

Sick Times republish of my op-ed!

A quick update as the sick times have republished my op-ed. I'm a bit addle brained so you're not getting a lot much in the way of intelligence but it does document some of the brain fog issues Sick t...

20 Maalis 6min

Light In Darkness

Light In Darkness

today I don't just document the grinding difficulty but my memory banks pulled up some really nice light and darkness times from when I was little and I also talk about some really nice things from so...

18 Maalis 20min

Leadership And Power Musings

Leadership And Power Musings

where I talk about how I feel about My power and the leadership roles I have been in and the leadership roles I may be in in the near future depending on how the email campaign goes speaking of which ...

16 Maalis 22min

pt 6: Ides of March squish squash

pt 6: Ides of March squish squash

where I talk about how rest day is rarely just the rest day because all the stuff I've been compartmentalizing comes out and wants to be processed. which is not very restful. having my body not moving...

16 Maalis 13min

pt5: pi Day squish squash continues

pt5: pi Day squish squash continues

It's pi day. unfortunately I don't have any actual pie to celebrate with. But I hope you're having some nerdy fun. For me it's whimsy as I'm still experiencing squish squash. Still documenting what it...

15 Maalis 15min

pt4: Friday the 13th squish squashed, The hits keep coming

pt4: Friday the 13th squish squashed, The hits keep coming

things that got even worse today. So much so that I called a friend, had a meltdown, which I talk about in the episode, and decided that I am the universe's chew toy. yeah, a little dramatic for sure....

14 Maalis 30min

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