pt3: squish squash brick wall
I AM MADELINE10 Maalis

pt3: squish squash brick wall

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get into the hyperbaric chamber we're paying impossibilities that were just going to make me worse. The kind of long-term pain especially the fibromyalgia colliding with the dyslexia and the architectural pain which creates a special kind of hell. And add to that the new motor on my scooter creating a high-pitched war which collides with the sound sensitivity portion of ME and fibro. And on top of that because of forces outside of his control haven't been able to see my physio for almost 6 weeks. And I haven't had this extent of pain nausea and pain nightmares since the COVID lockdown. now that of course got way worse because it was months. But even being three to four weeks late for physio means i have quite the cacophony of pain, amplified exhaustion, and loss of emotional resiliency

Jaksot(141)

pt2: squish squash pain meats dreams middle of the night episode

pt2: squish squash pain meats dreams middle of the night episode

at 6:00 a.m. or so and I've been awake since 2:00. I promised myself I would document all of the stuff particularly how hard things are. This is me without the coping strategies of the previous episod...

10 Maalis 16min

Squish Squashed

Squish Squashed

we're a talk about the many different kinds of difficult things I'm attempting to deal with, advocacy next steps, advocacy current obstacles, and health supports obstacles. hence the title squish squa...

10 Maalis 26min

Broken Glass and Other Heartaches

Broken Glass and Other Heartaches

It's Valentine's Day(you'll see I'm wearing red Because I'm a big believer and celebrating whenever possible. It does a brain good!), but unfortunately disability bias issues do not take a holiday nor...

15 Helmi 22min

YouTube LIVE recording of petition presentation January 21st 2026

YouTube LIVE recording of petition presentation January 21st 2026

petition presentation live stream link https://www.youtube.com/live/PN6-ewFs-00?si=UBsftv5p3FLnMc7malthough the petition has been presented we are leaving the document and its additional resources up ...

21 Tammi 11min

Jan 21st Petition Presentation In Person!

Jan 21st Petition Presentation In Person!

Petition presentation is Wednesday the 21st 11:00 to 11:30 a.m. Pacific standard Time. The zoom room will be open from 10:45 to 11:45. I do explain how that will work in this episode as well as what i...

16 Tammi 8min

Energy Overdrawn

Energy Overdrawn

episode done at a hospital treatment. kind of a recording in the wild lol Links I mentioned Petition https://bit.ly/Marcia_petitionCanary opted December 19th 2025 https://www.thecanary.co/opinion/2025...

9 Tammi 9min

Jan 1, 2 AM, 2026

Jan 1, 2 AM, 2026

photo is of first blossoms that I saw yesterday! That usually lifts my spirits Because I love spring. But it's the wee hours in the morning where pensive and melancholy seem to be emotions that I'm ex...

1 Tammi 17min

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