Episode 446: MS Advocacy and the National MS Society's Public Policy Conference with Steffany Stern
RealTalk MS16 Maalis

Episode 446: MS Advocacy and the National MS Society's Public Policy Conference with Steffany Stern

175 MS activists are heading to Washington, D.C. next week for the National MS Society's Public Policy Conference. Their mission: to bring the concerns of the MS community directly to lawmakers on Capitol Hill.

When it comes to the legislative support for healthcare and medical research, it's no secret that these are unusual times. Joining me to brief us on the National MS Society's ongoing advocacy efforts and give us a sneak peek at the specific legislative issues we'll be taking to Capitol Hill is the National MS Society's Vice President of Advocacy, Steffany Stern.

We'll also share updated results from an important study that show the risk of developing MS if a close relative is living with the disease is significantly higher than researchers originally thought.

And we'll give you all the details of a Phase 1 clinical trial that's focused on a novel approach to CAR-T cell therapy for MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Preparing for the MS Society's Public Policy Conference :22

I'm asking for your support: 1:37

An update to a 2015 study shows close relatives of people living with MS are 100 times more likely than the general population to develop MS 2:15

A novel approach to CAR-T cell therapy for MS is recruiting for a Phase 1 clinical trial 4:26

Steffany Stern, the Vice President of Research at the National MS Society, shares a major advocacy win and previews next week's Public Policy Conference in Washington, D.C. 7:27

Share this episode 33:04

Next week 33:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/446

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Support Jon at WALK MS
https://realtalkms.com/walkms

JOIN: Become an MS Activist
https://nationalmssociety.org/advocacy

STUDY: A Prospective Study of Individuals at Risk of Multiple Sclerosis Informs the Design of Primary Prevention Studies
https://onlinelibrary.wiley.com/doi/10.1002/acn3.70340

GEMS Study Recruitment
https:/nationalmssociety.org/news-and-magazine/news/ms-study-alert-gems

RealTalk MS Ep. 439: Preventing MS with Dr. Bruce Bebo
https://realtalkms.com/439

PARTICIPATE: A Study to Assess the Safety and Clinical of Azer-cel in Participants with B-cell Mediated Autoimmune Disorders
https://clinicaltrials.gov/study/NCT06680037/#contacts-and-locations

JOIN: The RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

REVIEW: Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 446
Guests: Steffany Stern

Privacy Policy

Jaksot(504)

Episode 32: MS Rehabilitation & Symptom Management

Episode 32: MS Rehabilitation & Symptom Management

Living your best life while you're living with MS means learning how to manage and overcome the physical and psychological limitations that MS tries to impose. This week's guest, Dr. Kathleen Zackowsk...

15 Touko 201840min

Episode 31: David Mitchell & Patients For Affordable Drugs

Episode 31: David Mitchell & Patients For Affordable Drugs

In 2004, the average wholesale price of available MS disease-modifying therapies was $16,000. In 2013, the average price was $61,000; last year, the average price was more than $83,000. That's why my ...

8 Touko 201828min

Episode 30: Dr. Matthew Miles & MS Research Australia

Episode 30: Dr. Matthew Miles & MS Research Australia

We have a lot to talk about in this podcast episode! First, a big announcement...the RealTalk MS Podcast has its own Amazon Alexa Skill! If you already own an Amazon Echo, Dot, or any Alexa-enabled de...

1 Touko 201841min

RealTalk MS Episode 29: New Treatment Guidelines For MS Announced

RealTalk MS Episode 29: New Treatment Guidelines For MS Announced

The American Academy of Neurology (AAN) is holding its Annual Meeting this week in Los Angeles. And with more than 10,000 neurologists all in one place, we're talking about a LOT of news coming out of...

24 Huhti 201825min

RealTalk MS Episode 28: Pediatric MS With Dr. Emmanuelle Waubant

RealTalk MS Episode 28: Pediatric MS With Dr. Emmanuelle Waubant

When we think about MS, we tend to think about it as an adult disease. But the National MS Society reminds us that between 8,000 and 10,000 children up to 18 years old are living with MS in the United...

17 Huhti 201831min

RealTalk MS Episode 27: Tech Tools To Manage MS

RealTalk MS Episode 27: Tech Tools To Manage MS

As technology advances at an ever increasing rate, it's speeding up the pace of scientific discovery. In this week's podcast, we're looking at new tech tools -- smartphone apps, desktop programs, and ...

10 Huhti 201825min

RealTalk MS Episode 26: Stephanie Buxhoeveden Is An MS Nurse Who Also Happens To Have MS

RealTalk MS Episode 26: Stephanie Buxhoeveden Is An MS Nurse Who Also Happens To Have MS

My podcast guest Stephanie Buxhoeveden was diagnosed with MS when she was 25 years old, working as a neurosurgical ICU nurse. Today, Stephanie is a board-certified Multiple Sclerosis Nurse, she is a N...

3 Huhti 201829min

RealTalk MS Episode 25: Progressive MS Day With Dan & Jennifer Digmann

RealTalk MS Episode 25: Progressive MS Day With Dan & Jennifer Digmann

March is MS Awareness Month, and tomorrow we'll be observing the first ever Progressive MS Day, which is being celebrated by several MS advocacy groups and state governments around the United States. ...

27 Maalis 201829min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
vakeva-elama-viisaampi-mieli-vahvempi-keho
tiedenaiset-podcast
rss-pitaisko-erota
puhu-muru
rss-narsisti
terapiassa
rss-kuumilla-aalloilla
rss-uplevel-by-sonja-hannus
junnut-pelissa
rss-rakas-mielenterveyteni
katilon-kahvitunti
meditaatiot-suomeksi
selviytyjat-tarinoita-elamasta
rss-duodecim-lehti
rss-ehjaksi
rss-vapaudu-voimaasi
rss-kyykkya-ja-kuoharia