Episode 448: At the National MS Society's Public Policy Conference with David, Cliff, and Michelle
RealTalk MS30 Maalis

Episode 448: At the National MS Society's Public Policy Conference with David, Cliff, and Michelle

Last week, about 170 MS activists from across the country gathered in Washington, D.C. to participate in the National MS Society's Public Policy Conference. It's hard to come away from this event and not feel outraged by the stories that are shared, but also inspired by the resilience and bravery of the MS Activists who are willing to share some of the worst moments in their MS journey to make sure that our elected representatives in the House and Senate understand why the legislation we ask them to support is so vitally important.

I met so many truly amazing MS activists at this year's Public Policy Conference, and you'll meet some of them in this week's episode. We're also sharing survey results that paint a disturbing picture of the human consequences that resulted from losing Congressional funding to support enhanced premium tax credits for ACA Marketplace Enrollees

The National MS Society has invested $2.3 million in 11 research projects focused on women's health issues and MS. We're sharing details of each new research initiative being funded.

You'll learn about a clinical trial for a novel investigational therapy for MS and other autoimmune diseases.

And we'll tell you about a study that you can participate in from home...and get compensated for your participation!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We're at the Public Policy Conference :22

Survey results show the human consequences of losing Congressional funding to support enhanced premium tax credits for ACA Marketplace Enrollees 4:45

The National MS Society invests $2.3 million dollars in research projects focused on women's health issues and MS 7:23

The first healthy participant is dosed in the clinical trial for ICP-538 11:24

An opportunity to participate from home in a clinical trial (and there's compensation!) 12:41

MS Activists David, Cliff, and Michelle share their thoughts on attending the MS Society's Public Policy Conference 15:27

Share this episode 30:10

Next week 30:30

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/448

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Support Jon at WALK MS
https://realtalkms.com/walkms

JOIN: Become an MS Activist
https://nationalmssociety.org/advocacy

LISTEN: RealTalk MS Episode 446 -- MS Advocacy and the National MS Society's Public Policy Conference with Steffany Stern
https://realtalkms.com/446

SURVEY RESULTS: Cost Concerns and Coverage Changes: A Follow-Up Survey of ACA Marketplace Enrollees
https://www.kff.org/public-opinion/a-follow-up-survey-of-aca-marketplace-enrollees

PARTICIPATE: A Study to Determine How Well Different Fall Prevention Programs Work for People with Spinal Court Injury and Multiple Sclerosis
Email for More Information: DpQol-FallPrev@illionois.edu

JOIN: The RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

REVIEW: Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on X, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 448
Guests: David Silbaugh, Cliff Currie, and Michelle Constantine Hibbs

Privacy Policy

Jaksot(502)

Special Episode: Guiding the Future of MS Care: MS21 Consensus Recommendations for Improving MS Care to Relieve the Burden of Disease

Special Episode: Guiding the Future of MS Care: MS21 Consensus Recommendations for Improving MS Care to Relieve the Burden of Disease

This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States ...

11 Joulu 202514min

Episode 432: Working With a Health & Wellness Coach with Amy Behimer

Episode 432: Working With a Health & Wellness Coach with Amy Behimer

Michael Jordan never won an NBA championship until he was paired with the right coach. Then, he won six. Could working with a coach change your MS journey? In this week's episode, health & wellness c...

8 Joulu 202540min

Special Episode: I'm the First Participant in a CAR-T Cell Therapy Clinical Trial with Jan Janisch-Hanzlik

Special Episode: I'm the First Participant in a CAR-T Cell Therapy Clinical Trial with Jan Janisch-Hanzlik

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In this final episode of this series, you'll meet Jan Janisch-...

4 Joulu 202520min

Episode 431: When a Teenager Becomes a Caregiver For a Parent With MS with Michaela Janssen Pohl

Episode 431: When a Teenager Becomes a Caregiver For a Parent With MS with Michaela Janssen Pohl

At the age of 14, Michaela Janssen Pohl became a caregiver for her mother, who lives with MS. I think most of us can agree that just being a teenager carries with it more than enough challenges. Thos...

1 Joulu 202534min

Episode 430: Navigating Winter Weather When You're Living with MS with Dr. James Stark

Episode 430: Navigating Winter Weather When You're Living with MS with Dr. James Stark

Almost everyone with MS is aware of their sensitivity to heat. But cold weather presents a whole different set of challenges that we don't always think about. This week, I'm talking with Dr. James Sta...

24 Marras 202536min

Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In today's episode, you'll meet two participants from the TEAM...

20 Marras 202516min

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Being a caregiver for a loved one with MS isn't an easy job. And, while it may consume hours of your time, often, it's not your only job. Many caregivers are the only family members bringing in an inc...

17 Marras 202530min

Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

As researchers continue to learn about MS, it becomes clear that you can change the trajectory of your MS journey and improve your quality of life by making smart lifestyle choices. Quitting smoking a...

10 Marras 202532min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
vakeva-elama-viisaampi-mieli-vahvempi-keho
tiedenaiset-podcast
rss-pitaisko-erota
rss-narsisti
terapiassa
junnut-pelissa
puhu-muru
meditaatiot-suomeksi
aamukahvilla
rss-kuumilla-aalloilla
paritellen
rss-uplevel-by-sonja-hannus
rss-mighty-finland-podcast
rss-vapaudu-voimaasi
mielen-puolikkaat
rss-pt-paahtio