Day 3 - Lilly Stairs - The Power of Patient Communities & Network Advocacy

Day 3 - Lilly Stairs - The Power of Patient Communities & Network Advocacy

What does ambition look like when you're living with a chronic condition? How do you build a vibrant life and career when your body requires you to work smarter, not harder?In this candid and inspiring fireside chat, Dr. Kara Wada sits down with internationally recognized patient advocate and entrepreneur, Lilly Stairs. Lilly shares her personal story of being diagnosed with three autoimmune diseases at age 19 and the "identity quake" that followed. She discusses how she redefined ambition, the crucial difference between support from family and support from peers, and the power of setting boundaries to say "yes" to yourself and your dreams.Tune in to this powerful conversation to learn how to navigate your career with chronic illness, find a community that truly "gets it," and hear the simple, reassuring message you might need to hear most: you're still going to live a beautiful, vibrant life.SESSION IN A GLANCE00:00 Introduction02:44 The 'Identity Quake' of a Diagnosis at 1906:43 Redefining Ambition with a Chronic Condition09:19 Finding Your People: The Importance of Peer Support14:00 The Power of Boundaries in Your Work and Life16:30 How to Advocate for Accommodations in the Workplace20:29 The One Thing I Wish Someone Had Told Me23:03 Where to Find and Connect with LillyABOUT LILLY STAIRSLilly Stairs is an internationally recognized patient advocate, serial entrepreneur, and sought-after speaker. Diagnosed with multiple autoimmune diseases, she is the Founder of the Chronic Boss Collective, a networking membership for ambitious business women with chronic conditions, and Patient Authentic, a consultancy that helps healthcare organizations build meaningful experiences for patient advocates. Lilly serves as the Board Chair of the Autoimmune Association, dedicating her life to empowering the autoimmune community.CONNECT WITH LILLY STAIRSWebsite → https://www.chronicbosscollective.com/LinkedIn → https://www.linkedin.com/in/lilly-stairs/Instagram → https://www.instagram.com/lillystairs/?hl=enInstagram → https://www.instagram.com/chronicbosscoABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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Jaksot(25)

Day 3 - Kara Wada, MD - Beyond Medication: The 3-Visit Immune Reset

Day 3 - Kara Wada, MD - Beyond Medication: The 3-Visit Immune Reset

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Day 3 - Kara Wada, MD & Janet Steins - Roundtable: "The Clinical Trial Journey: Patient Perspectives & Insights"

Day 3 - Kara Wada, MD & Janet Steins - Roundtable: "The Clinical Trial Journey: Patient Perspectives & Insights"

What is it really like to be in a clinical trial for a new Sjogren's medication? What are the tests like? What's the time commitment? And is it worth it?In this unique and candid roundtable discussion...

19 Heinä 202554min

Day 3 - Delia Chiaramonte, MD - Caring for Someone You Love Without Losing Yourself

Day 3 - Delia Chiaramonte, MD - Caring for Someone You Love Without Losing Yourself

Caregivers often struggle to remain empathetic and compassionate without becoming depleted and overwhelmed, leading to guilt, resentment, and burnout. But it doesn't have to be this way.In this deeply...

19 Heinä 202526min

Day 3 - Kristina Kelly, BCPA - Hack Your Healthcare_ Top 10 Tips for Tough Talks with Docs

Day 3 - Kristina Kelly, BCPA - Hack Your Healthcare_ Top 10 Tips for Tough Talks with Docs

Do you ever leave a doctor's appointment feeling rushed, unheard, or more confused than when you arrived? The emotional toll of dismissal and confusing medical jargon can leave Sjogren's patients feel...

19 Heinä 202523min

Day 3 - Bexi Lobo, PhD - Networking and Advocacy - Making a Difference Together

Day 3 - Bexi Lobo, PhD - Networking and Advocacy - Making a Difference Together

Do you ever leave a doctor's appointment feeling rushed, unheard, or more confused than when you arrived? The emotional toll of dismissal and confusing medical jargon can leave Sjogren's patients feel...

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Day 3 - Jillian Rigert, DMD, MD, ACC, TIPC- The Importance of Compassionate, Trauma-Informed Care To Cultivate Healing

Day 3 - Jillian Rigert, DMD, MD, ACC, TIPC- The Importance of Compassionate, Trauma-Informed Care To Cultivate Healing

Autoimmune conditions and their symptoms are often exacerbated by trauma and stress. While we are often taught to internalize our emotions and stress, this can lead to self-criticism that only fuels t...

19 Heinä 202525min

Day 3 - Bianca Campbell - Intergenerational Trauma AND Resilience for Stress Reduction

Day 3 - Bianca Campbell - Intergenerational Trauma AND Resilience for Stress Reduction

What if the patient you see as "difficult" is actually traumatized? For many living with Sjogren's, years of medical dismissal, normal lab results despite debilitating symptoms, and being told "it's a...

19 Heinä 202524min

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