Carly and Catherine: Hope, Uncertainty, and Clinical Trials.
Catherine, who is living with IgA nephropathy (IgAN), and Carly, a speech-language pathologist whose CIDP once left her paralyzed and dependent on a ventilator, share their experiences participating i...
6 Elo 27min
Holly: Moving Forward with Myositis.
Holly shares her story of being diagnosed with myositis at just 19 years old and transforming the challenges of a rare autoimmune disease into a lifelong commitment to advocacy and community. Join Mar...
15 Heinä 28min
Amanda: From CIDP Diagnosis to Discovering Her Purpose
Amanda shares how a CIDP diagnosis changed nearly every aspect of her life, ultimately leading her to become a powerful advocate for the rare disease community. Join Martine Hackett as she explores th...
1 Heinä 27min
Alicia: The Long Road to Answers with Seronegative MG
Alicia, an artist and musician living with seronegative MG, shares her story of persistence, self-advocacy, and finding the right support system. Join Martine Hackett as she explores how connection an...
17 Kesä 24min
Mel & Lindsay: Different Diagnoses. Shared Experiences.
Mel is a dancer living with CIDP. Lindsay is a writer living with dermatomyositis. In this episode, Martine Hackett explores how similar the emotional journey can feel as two people living with differ...
2 Kesä 27min
Untold Stories is back for Season 6!
Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. The best stories unite us, empower us, and help us push forward—against all odds. This season, we’...
13 Touko 1min
Brandon & Dr. Thawani: The power of shared-decisions
After a sudden change in mobility, Brandon Cutrell found himself on an unexpected path toward a CIDP diagnosis. That journey led him to build a remarkable partnership with his neurologist, Dr. Sujata ...
24 Joulu 202529min
