Carly and Catherine: Hope, Uncertainty, and Clinical Trials.
Catherine, who is living with IgA nephropathy (IgAN), and Carly, a speech-language pathologist whose CIDP once left her paralyzed and dependent on a ventilator, share their experiences participating i...
6 Elo 27min
Holly: Moving Forward with Myositis.
Holly shares her story of being diagnosed with myositis at just 19 years old and transforming the challenges of a rare autoimmune disease into a lifelong commitment to advocacy and community. Join Mar...
15 Heinä 28min
Amanda: From CIDP Diagnosis to Discovering Her Purpose
Amanda shares how a CIDP diagnosis changed nearly every aspect of her life, ultimately leading her to become a powerful advocate for the rare disease community. Join Martine Hackett as she explores th...
1 Heinä 27min
Alicia: The Long Road to Answers with Seronegative MG
Alicia, an artist and musician living with seronegative MG, shares her story of persistence, self-advocacy, and finding the right support system. Join Martine Hackett as she explores how connection an...
17 Kesä 24min
Mel & Lindsay: Different Diagnoses. Shared Experiences.
Mel is a dancer living with CIDP. Lindsay is a writer living with dermatomyositis. In this episode, Martine Hackett explores how similar the emotional journey can feel as two people living with differ...
2 Kesä 27min
J’Sean: The Impact of MG with Ocular Symptoms
In the season premiere, J’Sean shares what it’s like to live with MG with ocular symptoms. Join Martine Hackett as she explores the real impact of ocular symptoms–– and how understanding that impact c...
20 Touko 29min
Untold Stories is back for Season 6!
Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. The best stories unite us, empower us, and help us push forward—against all odds. This season, we’...
13 Touko 1min
Brandon & Dr. Thawani: The power of shared-decisions
After a sudden change in mobility, Brandon Cutrell found himself on an unexpected path toward a CIDP diagnosis. That journey led him to build a remarkable partnership with his neurologist, Dr. Sujata ...
24 Joulu 202529min
