SCD Stories21 Huhti 2023

Hope And Destiny With Dr. Lewis L. Hsu

Hope and Destiny is available at:

https://www.amazon.com/

https://hpcinternationalinc.com/bookstore

Lewis Hsu co-authored "Hope & Destiny" with Allan Platt Jr. and James Eckman.

The book aims to provide comprehensive education about sickle cell disease and accurate information about treatment regimens, medications, and medical insights to help patients and their loved ones cope with the physical, emotional, and psychological distress caused by SCD.

The revised edition provides updated information on sickle cell disease, including COVID-19's impact on the disease, pain management guidance, and new resources available to patients, parents, and caregivers.

The book series is trusted by patients, caregivers, healthcare professionals, and students around the world and has sold over 75,000 copies since its first publication.

The authors wanted to use plain language for the public and voice the stories of individuals with sickle cell disease.

The authors are also working on other literature on sickle cell trait and awareness.

Progress in the field of sickle cell disease continues to be made.

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(19)

The Marilyn Jackson Story

Host: Dwayne GoldenGuest: Marilyn Jackson, grandmother, vegan chef, and sickle cell disease advocateDiscussion on the prevalence of sickle cell disease globally and its limited awareness in the United...

10 Marras 202425min

Maria Mendoza's Story

Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 ...

5 Touko 202337min

Hope & Destiny With Dr. Allan Platt

Allan Pratt is the author of "Hope and Destiny," a book about sickle cell disease that aims to educate patients, families, and clinicians about the disease.The book was inspired by a lack of services ...

28 Huhti 202332min

Destiny Van Sciver

Destiny Van Sciver is the author of "Sickle Cell Superheroes" and a mother of a child with Sickle Cell Disease.She wants her book to empower people with the disease to live a good quality life and be ...

14 Huhti 202337min

Megan Lippert

Hilton Publishing Co. specializes in health-related content.They collaborated with doctors to publish their first book on Sickle Cell Disease called "Hope & Destiny."The company has since published se...

7 Huhti 202336min

Shyala Pelmon, Living Well With Sickle Cell

Synopsis: In this episode, host Dwayne Golden speaks with sickle cell warrior and advocate Shyala Pelmon about what it means to live well with sickle cell disease. Charlotte shares her perspective on ...

24 Maalis 20238min

Michelle Parr Story

Dwayne Golden interviews Sickle Cell Disease advocate and patient, Michelle ParMichelle shares her experiences growing up with Sickle Cell Disease and feeling different from her peersThe difficulty of...

17 Maalis 20239min