Venting

What really frustrates young people about living with epilepsy?

In this honest and unfiltered episode of Let's Talk About Epilepsy, host Cam is joined by members of Young Epilepsy's Youth Voice Network: Hattie, Sophie and Spike. Together, they create a safe space to vent about the realities of living with epilepsy and the challenges that often go unseen.

From lack of understanding in schools and workplaces to navigating friendships, dating, independence and public transport, the conversation shines a light on the barriers, misconceptions and frustrations that many young people with epilepsy face every day.

Our guests share personal experiences of being excluded from activities, struggling to access the right support, managing medications, dealing with stigma, and fighting for their voices to be heard. They also discuss the importance of good support networks, self-advocacy and connecting with others who understand what life with epilepsy is really like.

While some of the topics discussed are challenging, this episode is full of humour, resilience and encouragement for other young people living with epilepsy.

⚠️ Trigger warning: This episode contains discussion of seizures, discrimination, mental wellbeing challenges, medication side effects and SUDEP (Sudden Unexpected Death in Epilepsy).

NOTICE: Epilepsy is a highly individualised condition. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice. Always consult a qualified healthcare provider for personalised support.

If you’re feeling sad, worried, or lonely, text ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

🔗 Support and signposting

• Information about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy
• Youth Voice Network: https://www.youngepilepsy.org.uk/get-involved/youth-voice-network Support for young people and families: https://www.youngepilepsy.org.uk/support-and-services
• The Channel - A space for young people, aged 13+, who are living with epilepsy, for them to share, learn and find support: https://www.youngepilepsy.org.uk/i-have-epilepsy/the-channel

📲 Follow Young Epilepsy:

• Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy