The Patient's Role in Their Own Healthcare

The Patient's Role in Their Own Healthcare

You are the world's foremost expert at living in your body. No one is a bigger expert on who you are and how you feel than you. Your Mission, should you choose to accept it, is to take responsibility for your own healthcare. Discover how to develop a more collaborative relationship with our providers, and provide them with the right information, so they can make the right diagnosis and help us create the right treatment plan for our specific challenges… and then follow through on what we decide we need to do.

Key Points

  • Our providers' jobs are the easy 2%—telling us what needs to be done.
  • Our job as the patient is the really hard 98%—actually doing the things it takes to feel our best.
  • You have 100% control over how you are actively participating in a mental and emotional way, and how you are receiving what your providers have to offer.
  • Use data to give a balanced, true picture of how we are doing when we are talking with our providers. If I say "I can't stand very long," that is very different than: "I can only stand for 5 minutes," or "I can only stand for an hour."
  • You are the one living inside your body. You are the one who has to take care of it.
  • How do you go about doing that really hard 98% of following through?

Links & Resources

Jaksot(236)

Is This an Excuse… or Is It Real? The Hidden Impact of Uncertainty

Is This an Excuse… or Is It Real? The Hidden Impact of Uncertainty

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PCOS + Fibromyalgia: When Your Symptoms Don't Fit One Box with Lindsie Vizethann

PCOS + Fibromyalgia: When Your Symptoms Don't Fit One Box with Lindsie Vizethann

When symptoms don't fit neatly into one box, it's hard to know where to turn. Many women with fibromyalgia are also dealing with things like painful or irregular periods, stubborn weight changes, fati...

21 Huhti 46min

Fibro Hierarchy of Needs: The Smarter Path To Better Results

Fibro Hierarchy of Needs: The Smarter Path To Better Results

"You're not failing because you're not trying hard enough. You're probably just doing the right things at the wrong time." - Tami Stackelhouse Have you ever felt the frustration of doing everything yo...

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Chronic Insomnia: When Your Brain Won't Let You Sleep with Dr. Leon Lack

Chronic Insomnia: When Your Brain Won't Let You Sleep with Dr. Leon Lack

"Anxiety from insomnia triggers our fight or flight reaction and that's not conducive to falling asleep." - Dr. Leon Lack There's a particular kind of exhaustion that comes with fibromyalgia, the kind...

24 Maalis 1h 15min

Spotlight on Hope for Pediatric Pain Warriors (Podcasthon 2026)

Spotlight on Hope for Pediatric Pain Warriors (Podcasthon 2026)

"It kind of felt like it was just her and I against the world." - Ann Garner When a child develops fibromyalgia or another chronic pain condition, it can feel incredibly isolating for the whole family...

17 Maalis 38min

How Do I Know If My Fibromyalgia Is Improving? Ask the Coach

How Do I Know If My Fibromyalgia Is Improving? Ask the Coach

"We don't go from severely symptomatic to fibro-free overnight, right? Improvement with fibromyalgia can be subtle, and it does take time." - Tami Stackelhouse Going through life with fibromyalgia, ma...

10 Maalis 43min

How to Ask for and Receive Help More Gracefully

How to Ask for and Receive Help More Gracefully

"Asking for and receiving help is not about being less capable. It's about using your limited energy for what matters most." - Tami Stackelhouse  If you've been living with fibromyalgia for some time,...

24 Helmi 47min

Replay: Special #4: How Do You Become a Certified Fibromyalgia Coach®?

Replay: Special #4: How Do You Become a Certified Fibromyalgia Coach®?

Welcome to the final episode of our special Be a Coach series. So far, I've answered questions about our Certified Fibromyalgia Advisor® class and what it takes to become a Certified Fibromyalgia Coac...

17 Helmi 35min

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