Empowering the Patient Voice in Innovation with Grace Vinton and João Bocas

João Bocas - The #Wearables Expert ™ Interviews Grace Vinton - Patient Advocate, Digital Health Influencer and Healthcare PR pro.

In this episode, we talked about #patient voice in #innovation and how we can fix a common problem of dismissing patients' interactions and contributions to create new innovations.

Here are the questions we've addressed:

01:27 What is the "care web" and why does seeing care as a "web" help inform patient-informed informatics?

04:14 What do digital therapeutics and healthcare informatics typically miss about the patient reality? Aren't we all patients? What are we missing?

09:35 What can we do to fix this problem?

Connect with Grace Vinton:

LinkedIn: https://www.linkedin.com/in/gracevinton/

Twitter: https://twitter.com/HITeaWithGrace

Share this episode with your networks - https://www.youtube.com/watch?v=Czt4S...

Feel free to 📣 CONNECT WITH ME 🟢:

LinkedIn: https://www.linkedin.com/in/joaobocas/

Twitter: https://twitter.com/WearablesExpert

But there's a problem: sometimes when patients try to contribute their knowledge, we don't listen. It's not because we don't care—it's because we've been trained to think of patients as "the other," as outside of our world, as someone who is different from us.

That's why we're working so hard to change the way we think about our relationship with patients. We want to see them as collaborators in creating new innovations that will help them live better lives. We hear it all the time: patients want to be heard.

They want more than just a place to get their treatment, they want to feel like what they have to say matters and that their experiences can help shape how the healthcare system works. And yet, we still often hear about patients being ignored when it comes to innovation.

It's not hard to understand why this happens. Doctors and nurses are busy people who are trained to focus on the technical aspects of their jobs, but we also know that there's a lot of value in listening to patients' interactions—and that it can lead directly to better care for everyone involved.

But where do you start? How do you make sure your team is getting the most out of every interaction with patients? Here are some ideas:

• Keep an open mind, even if it seems like something isn't possible or feasible right now

• Ask questions about what people want, instead of assuming you already know what they need

• Encourage an open dialogue between doctors, nurses, and other members of your team so everyone has a chance at contributing their ideas