Understanding Anxiety and Behavior in Adults with Angelman Syndrome with Dr. Keary
Share Your Feedback or Recommend New Topics In this episode of the ASF Podcast, Kathryn Ely, ASF Family Resource Director, sits down with Dr. Christopher Keary of Massachusetts General Hospital to dis...
14 Loka 1h 8min
26.2 Miles Together: Todd & Logan’s Chicago Marathon Journey
Share Your Feedback or Recommend New Topics Chicago-area attorney and father of three, Todd Hill, joins guest host and fellow Angelman dad, AJ Knouff, to share Todd’s adventure taking on 26.2 miles at...
5 Loka 41min
ASPIRE Trial Results: A Panel Discussion
Share Your Feedback or Recommend New Topics ASF CEO, Amanda Moore sits down with researchers and clinicians who understand both the science and the lived experience of Angelman syndrome. They discuss ...
30 Syys 59min
The Paper Bag Plan: Caregiving, Independence, and Planning Ahead
Share Your Feedback or Recommend New Topics In this episode, ASF CEO Amanda Moore is joined by Christian Pache, an Angelman dad and ASF board member; Anthony Lucero, the filmmaker behind The Paper Bag...
27 Tammi 42min
Protecting Your Mental Health During the Holidays
Share Your Feedback or Recommend New Topics The holidays can be joyful – and overwhelming – especially for families caring for someone with Angelman syndrome. In this episode, ASF Family Resource Dire...
18 Joulu 202530min
Advocacy Abby: Opening Doors to Resources and Relief
Share Your Feedback or Recommend New Topics In this episode, Amanda sits down with Abby Zachritz, better known as Advocacy Abby, the Director of Family Advocacy at Support Now and creator of the Conne...
10 Marras 202545min
Advocating for Access: How Policy Shapes the Future of Gene Therapy
Share Your Feedback or Recommend New Topics ASF CEO Amanda Moore talks with former Congressman Erik Paulsen, Chairman of the Institute for Gene Therapies, about how policy and advocacy are shaping the...
30 Loka 202524min
