MS-Perspektive - The Multiple Sclerosis Podcast4 Marras

#190: Living with multiple sclerosis. Gabriela's story and the "(un)seen faces of MS" Art Project

https://ms-perspektive.de/en/190-unseen-faces-of-ms/Living with multiple sclerosis often means experiencing symptoms that others cannot see. Austrian artist Gabriela Romagna shares her journey to an MS diagnosis, how creativity helps her process her experiences, and why she started "(un)seen faces of MS." Through colourful portraits and personal stories, her project raises awareness of the diverse and often invisible realities of MS.

Read the full interview on the MS-Perspektive blog: https://ms-perspektive.de/en/190-unseen-faces-of-ms/

In this episode, we talk about:

Gabriela's journey from her first symptoms to her MS diagnosis.
Living with sensory overload, numbness and vision changes.
Choosing a treatment that fits her life.
Using art to express experiences that are difficult to put into words.
How "(un)seen faces of MS" works and how to participate.
Sharing personal stories while respecting privacy.
Balancing creativity, community and personal needs.
Her hopes for nerve repair and future MS research.

Links and resources

Related podcast episodes

Chapters

00:00 Introduction
00:45 Getting to know Gabriela
02:19 The road to an MS diagnosis
10:03 Coming to terms with MS
11:35 Living with invisible MS symptoms
13:23 Choosing an MS treatment
15:24 Art, creativity and processing the diagnosis
18:47 Bringing "(un)seen faces of MS" to life
21:25 Creating portraits beyond appearance
24:32 Sharing personal stories with care
25:26 How to join the portrait project
26:58 Balancing art, community and health
28:14 Hopes for MS research and nerve repair
28:58 Where to find Gabriela and get involved
29:50 Gratitude and final thoughts
31:32 Outro and a preview of the next episode

See you soon and try to make the best out of your life,
Nele

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Jaksot(192)

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