Dust Disease Diaries: Real lives, real stories of asbestos & beyond27 Kesä 2024

The challenges of coping with a Mesothelioma diagnosis: the essential role of the ADDRI Support Service

Receiving a mesothelioma diagnosis can be overwhelming for patients and their families. Often, they may not understand what this means, where to start, or what options are available.

In this episode, James O’Loghlin sits down with specialist nurse Jocelyn McLean, the founder of the ADDRI Support Service. With over 20 years of experience in providing pre-and post-operative education and support to thoracic surgery patients, including those diagnosed with mesothelioma, Jocelyn worked closely with Professor Brian McCaughan, a surgeon offering trimodality therapy (TMT), which involves chemotherapy, radical surgery (Extrapleural pneumonectomy EPP), and subsequent radiotherapy. Her firsthand experience with the vulnerability of these patients inspired her in 2014 to establish a service offering both emotional and practical support.

During this conversation, Jocelyn explains the vital role of the ADDRI Support Service. She discusses how specialist nurses help patients and their families navigate the healthcare system, clarify the information they receive, manage the complexities of medical treatments, and provide emotional support through phone, email, and group meetings.

If you or someone you care for has been diagnosed with mesothelioma, this is a must-listen conversation.

Find out more about the ADDRI Support Service here:

https://addri.org.au/support/getting-support/

You can listen to the conversations with the patients Jocelyn has supported: Sandie Foreman, Trevor and Shirley Seaman here:

https://podcasters.spotify.com/pod/show/dust-disease-diaries

Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios.

If you have any questions or comments, please email

info@addri.org.au

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