Coping, Denial or Both
I AM MADELINE26 Elo 2023

Coping, Denial or Both

Where I attempt to puzzle out explaining some of my coping strategies. Also ombudsman update plus an article that includes me should be coming out soon update. I talk about MS and ME briefly in this ep so here are some links about that: viral origins of myalgic encephalomyelitis, some of the history of its abdication, it's relationships to MS and AIDS and particularly to Epstein-Barr which was the virus that got me https://journals.plos.org/plospathogens/article?id=10.1371/journal.ppat.1011523#ppat.1011523.ref025 And this one draws distinct parallels between MS and ME and shows the seriousness and deadly nature of myalgic encephalomyelitis- Myalgic encephalomyelitis/chronic fatigue syndrome and encephalomyelitis disseminata/multiple sclerosis show remarkable levels of similarity in phenomenology and neuroimmune characteristics | BMC Medicine | Full Text https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-205 More info on MS and Epstein-Barr Clonally expanded B cells in multiple sclerosis bind EBV EBNA1 and GlialCAM https://www.nature.com/articles/s41586-022-04432-7 Gfm for those who want it https://gofund.me/cff39173 (Also bear with me guys as I try to find the perfect location for the microphone. I have to play with levels post recording when it turned out it was too close so I hope that's okay. I don't know have the energy or brain power to rerecord. Le sigh. It's hard to have the sound quality at the level that I want it to be while hanging off a cliff by a branch like a cartoon animal trying to be a magical Ted talk to drs, politicians, bureaucrats +now ombudsman, etc while also trying to navigate scarcity and illness. So I appreciate your forbearance💗. )

Jaksot(143)

Disability Hate(And how I'm trying to keep afloat)

Disability Hate(And how I'm trying to keep afloat)

the link to the Atlantic article in the previous episode expired so here's a new link that lets you read the article https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-...

6 Syys 202518min

Atlantic Readers welcome

Atlantic Readers welcome

The Atlantic article just came out https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-policy/683562/?gift=yKNFI6bZtyj8clr3yQtLYCSwFBjNIwPzg10Axz0GrTA&utm_source=copy-li...

19 Elo 202519min

disability prejudice vomited on me by a neighbour, AGAIN

disability prejudice vomited on me by a neighbour, AGAIN

Not sure why I'm surprised, but same neighbour tried to do it to me again today as I was exiting my apt. I was so tired, my body was in such pain. What the heck. When are we going to start accessibili...

7 Elo 20258min

BANJO!

BANJO!

Where I talk about the fact I have a total thing about banjos, the recent folk festival that I went to and that I've been volunteering for for about 30 years. Also the difficulties and trying to find ...

26 Heinä 202524min

HEAT

HEAT

where I talk about upcoming heat of 30° c and I still do not have a response from the crisis division of this ministry of social development of poverty reduction about a new air conditioner. And one t...

9 Heinä 202529min

Volunteering

Volunteering

purpose in this case volunteering helps me navigate difficulty eg things I've been talking about in the last few episodes

26 Kesä 202523min

Trauma Response

Trauma Response

interesting aha moment i had around my body's reaction to being under such difficulty for so long.

26 Kesä 202510min

Under pressure

Under pressure

You know in that Star wars movie where they all end up in that trash compactor getting compressed? welcome to my evening

25 Kesä 202535min

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