Brutality of post-exertion symptom exacerbation due only to lack of supports
I AM MADELINE3 Loka 2023

Brutality of post-exertion symptom exacerbation due only to lack of supports

I thought I would talk through post-exertion symptom exacerbation #pese while it was happening. I know that it's very hard for somebody who hasn't experienced it to really understand what it's like. The problem is I feel so fatigue cognitively impaired that I'm not sure how clear I was. But maybe that all into itself is an explanation. Also talk about a young person I met casually diagnosed with long covid without any instruction on The perils of overdoing and how you can permanently disable yourself. I do currently have enough money to make it to the end of next week but I'm really struggling with that daily and weekly fight to survive. Having pushed myself to try to clean because I'm really scared about my tenancy being at risk and the death sentence that anyone attempting to be force me into a care home would represent, it's really emotionally crushing me. I'm still aimed at getting to thanksgiving, and hoping that help bouys my spirit but it will make the post exertion symptom exacerbation fall off a cliff. And I don't currently have the resources to get enough treatments to get it to restabilize. And that doesn't begin to address having enough money to have enough treatments to have enough energy to clean my apartment. And around and around I go on the Merry-Go-Round of never having enough supports either on my disease or PWD assistance in general RICHOCHET article https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty Gfm https://gofund.me/cff39173 Email address, BUT not the one for the e-transfer cuz again I haven't been able to figure out how to set that up myself, but the way to reach me to give you the transfer info that liza set up when she set up the GoFundMe iammadelinepod@gmail.com

Jaksot(142)

pt4: Friday the 13th squish squashed, The hits keep coming

pt4: Friday the 13th squish squashed, The hits keep coming

things that got even worse today. So much so that I called a friend, had a meltdown, which I talk about in the episode, and decided that I am the universe's chew toy. yeah, a little dramatic for sure....

14 Maalis 30min

pt3: squish squash brick wall

pt3: squish squash brick wall

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get i...

10 Maalis 19min

pt2: squish squash pain meats dreams middle of the night episode

pt2: squish squash pain meats dreams middle of the night episode

at 6:00 a.m. or so and I've been awake since 2:00. I promised myself I would document all of the stuff particularly how hard things are. This is me without the coping strategies of the previous episod...

10 Maalis 16min

Squish Squashed

Squish Squashed

we're a talk about the many different kinds of difficult things I'm attempting to deal with, advocacy next steps, advocacy current obstacles, and health supports obstacles. hence the title squish squa...

10 Maalis 26min

Broken Glass and Other Heartaches

Broken Glass and Other Heartaches

It's Valentine's Day(you'll see I'm wearing red Because I'm a big believer and celebrating whenever possible. It does a brain good!), but unfortunately disability bias issues do not take a holiday nor...

15 Helmi 22min

YouTube LIVE recording of petition presentation January 21st 2026

YouTube LIVE recording of petition presentation January 21st 2026

petition presentation live stream link https://www.youtube.com/live/PN6-ewFs-00?si=UBsftv5p3FLnMc7malthough the petition has been presented we are leaving the document and its additional resources up ...

21 Tammi 11min

Jan 21st Petition Presentation In Person!

Jan 21st Petition Presentation In Person!

Petition presentation is Wednesday the 21st 11:00 to 11:30 a.m. Pacific standard Time. The zoom room will be open from 10:45 to 11:45. I do explain how that will work in this episode as well as what i...

16 Tammi 8min

Energy Overdrawn

Energy Overdrawn

episode done at a hospital treatment. kind of a recording in the wild lol Links I mentioned Petition https://bit.ly/Marcia_petitionCanary opted December 19th 2025 https://www.thecanary.co/opinion/2025...

9 Tammi 9min

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