Brutality of post-exertion symptom exacerbation due only to lack of supports
I AM MADELINE3 Loka 2023

Brutality of post-exertion symptom exacerbation due only to lack of supports

I thought I would talk through post-exertion symptom exacerbation #pese while it was happening. I know that it's very hard for somebody who hasn't experienced it to really understand what it's like. The problem is I feel so fatigue cognitively impaired that I'm not sure how clear I was. But maybe that all into itself is an explanation. Also talk about a young person I met casually diagnosed with long covid without any instruction on The perils of overdoing and how you can permanently disable yourself. I do currently have enough money to make it to the end of next week but I'm really struggling with that daily and weekly fight to survive. Having pushed myself to try to clean because I'm really scared about my tenancy being at risk and the death sentence that anyone attempting to be force me into a care home would represent, it's really emotionally crushing me. I'm still aimed at getting to thanksgiving, and hoping that help bouys my spirit but it will make the post exertion symptom exacerbation fall off a cliff. And I don't currently have the resources to get enough treatments to get it to restabilize. And that doesn't begin to address having enough money to have enough treatments to have enough energy to clean my apartment. And around and around I go on the Merry-Go-Round of never having enough supports either on my disease or PWD assistance in general RICHOCHET article https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty Gfm https://gofund.me/cff39173 Email address, BUT not the one for the e-transfer cuz again I haven't been able to figure out how to set that up myself, but the way to reach me to give you the transfer info that liza set up when she set up the GoFundMe iammadelinepod@gmail.com

Jaksot(143)

Energy Overdrawn

Energy Overdrawn

episode done at a hospital treatment. kind of a recording in the wild lol Links I mentioned Petition https://bit.ly/Marcia_petitionCanary opted December 19th 2025 https://www.thecanary.co/opinion/2025...

9 Tammi 9min

Jan 1, 2 AM, 2026

Jan 1, 2 AM, 2026

photo is of first blossoms that I saw yesterday! That usually lifts my spirits Because I love spring. But it's the wee hours in the morning where pensive and melancholy seem to be emotions that I'm ex...

1 Tammi 17min

pt 2 my op-ed Canary UK

pt 2 my op-ed Canary UK

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...

20 Joulu 20252min

My CanaryUK op-ed is out

My CanaryUK op-ed is out

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...

19 Joulu 20252min

Merry Merry

Merry Merry

where I talk about pushing my energy envelope so that I can have some good experiences in the face of all the hardship I'm going through. yeah it's making my pain and exhaustion dramatically worse but...

18 Joulu 202514min

The Fine Art Of Distraction

The Fine Art Of Distraction

where I talk about The fine art of distraction, a particularly bad episode of pain, the perils of not having housekeeping supports, fear around running out of the GoFundMe money that I use for treatme...

17 Joulu 202510min

Sinterklaas

Sinterklaas

where I talk about an op-ed I'm in the final edit stages (Yes I'll post it the minute it's up in a new episode) And I talk about Sinterklaas, celebration of the name day of St Nicholas, December 6th. ...

5 Joulu 202546min

preparation is the better part of valor

preparation is the better part of valor

to borrow part of a quote and replace discretion with preparation, hence preparation is the better part of valor when it comes to myalgic encephalomyelitis deterioration. So today I talk about some of...

1 Joulu 202524min

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