GROWING UP WITH AXYS, FEATURING EXEC. DIRECTOR CAROL MEERSCHAERT

GROWING UP WITH AXYS, FEATURING EXEC. DIRECTOR CAROL MEERSCHAERT

🟢 Who can parents turn to when they learn that their child has Extra X or Y chromosomes?

Why are so few people ever diagnosed, and health care provider awareness still low? How does AXYS fill the gaps for families and chromodiverse individuals?

What’s the golden standard today for care and research? How reliable is non-invasive prenatal screening?

Where can I meet other concerned people, families and experts? Is the neurodiversity call for “nothing about us without us” coming to chromodiversity?

To find out the answer to these and other urgent questions, listen to this highly informative conversation with Carol Meersheart, Executive Director of AXYS, the leading family association for X and Y chromosome variations based in the US.

For more information, check out the AXYS website featuring an abundance of useful resources and a hotline for one-on-one queries at genetic.org.

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Jaksot(40)

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How to Predict Autism in Extra X & Y Children (1/2)

How to Predict Autism in Extra X & Y Children (1/2)

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Extra X & Y: Exciting Future Trajectories*

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🟢 "Great genetic progress", "exciting early neurocognitive interventions", but "grave deficiency in current testing and care models" around the world. Listen to an easy to understand 25 minute summar...

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 Peter’s XXY Journey Part 2:  A Lifetime of Lessons

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 Peter’s XXY Journey Part 1: A 63-Year Diagnostic Odyssey

 Peter’s XXY Journey Part 1: A 63-Year Diagnostic Odyssey

🟢 “95% of my life has been spent not knowing of my 47,XXY. It was like getting into a boxing ring with as your opponent the invisible man. You never saw where the punches were coming from.”In this ex...

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"Radical Inclusion," Featuring Author Jodi Samuels* (2/2)

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