#09 - Awareness for XXY - Ryan Bregante

Yvette Maano is the mother of a young boy named Sammy. During her pregnancy, she was flagged for her baby boy having Klinefelter syndrome. After her diagnosis, her doctor handed her outdated information and asked if she wanted an abortion. After she declined, her doctor asked her if she was sure about her decision which left her feeling frustrated that she wasn't making a good decision. www.livingwithxxy.org

22 Tammi 202341min

Ariel Ze'evi might be the first man to share his story openly with the world from Israel. Ariel was diagnosed with Klinefelter syndrome while trying to create a family with his wife. He hid his diagnosis from family and friends for many years. After a successful Micro-Tese surgery and two beautiful boys, Ariel speaks out to break the stigma. He hopes that sharing his story will inspire others to come forward in his country, to create community, and save baby boys from termination. Www.livingwithxxy.org

18 Tammi 20231h 1min

Jared Pike was diagnosed with Klinefelter syndrome nearly 10 years ago while trying to have kids. After trying for more than five years and multiple sperm tests, a new doctor suggested doing a Karyotype. With his wife's support, Jared decided to take a year off from their fertility journey to process, understand, learn and grieve his new diagnosis. Jared explains in incredible detail how this journey improved his life.

15 Tammi 202358min

Jake Gray, at the age of 25, found out about his XXY diagnosis while his wife was being tested for some health concerns. The doctor wanted to try Jake for fertility since his wife was flagged for FMA. At 25, he was in shock and denial about his diagnosis. Now 27, Jake is a new father to a baby boy after choosing to use donor sperm. Jake dives deep into the process, emotional stresses, and costs of using a donor. Jakes's Biography can be found Here.

1 Marras 202258min

After Sierra Westley Wilson became pregnant at 27, she wanted to know the gender of their baby, so they did NIPT, and they were told they had a 36% chance of their baby having Klinefelter syndrome. Once her son was born, they did a routine blood draw, and two weeks later, they learned their son had 48, XXXY.

25 Loka 202251min

In 2021, the day after Christmas, Elliott was hanging out with his niece and nephew, who were 8 and 12. The kids were telling him that he was a fantastic uncle. Suddenly his niece told him he couldn't have kids and that he could adopt if he wanted to. He felt they knew something he didn't know. Elliott Day, from Scotland, in his late 30s, looked into getting his medical records from the NHS. He was diagnosed very young, but no one bothered to tell him.

18 Loka 20221h 19min

At 41 years old, Ryan Brown opens up to spread more awareness about his life with Klinefelter syndrome. When he had been trying to have kids with his ex-wife for over a year, the doctors recommended they both do fertility testing. After a sperm sample and a series of other tests, Ryan discovered he had XXY. Ryan is now on track to compete in bodybuilding and is a head chef at a group home.

11 Loka 202244min

Gareth Landy was the first person on our podcast from Ireland. He was diagnosed with Klinefelter syndrome while trying to start a family. Gareth did his first podcast in March of 2021. Since March, he has been on a mission to raise awareness about male infertility. Gareth talks about his experience and becomes an advocate for other men across western Europe and his fight to normalize life with XXY. With the help of a sperm donor, Gareth and his wife went thru 3 rounds of IVF before falling pregnant with twins. He has biked the entire length of Ireland to raise money for kids with cancer and has run three full marathons. https://livingwithxxy.org/

20 Syys 202255min