#86 - Hunter College Presentation - What Is XXY?
Livingwithxxy11 Maalis 2023

#86 - Hunter College Presentation - What Is XXY?

Recently Ryan Bregante and Kelsey Fuglsby had the opportunity to be guest speakers at Hunter College in NYC. The Class is called Abnormal Psychology which has roughly 100 students. This video is just a few of the highlights from our hour-long conversation.

1-500 men are born with Klinefelter syndrome, a genetic condition in which males are born with an extra X chromosome. Ryan was born with XXY and is the founder and president of Living with XXY Nonprofit. Kelsey Fuglsby is the mother of a 14-year-old boy named Elliott, diagnosed at ten years old. Only 25% of our community will receive a diagnosis. 75% will die, never knowing. You can find the video highlights HERE. For more information, please visit: https://livingwithxxy.org/

Jaksot(108)

#105 - Mother of Boy with XXY - Carolina (Brazil)

#105 - Mother of Boy with XXY - Carolina (Brazil)

Carolina is the first person from Brazil to share her story on our podcast. She was 35 when she was pregnant so her OBGYN was concerned due to her older age. She asked her to proceed with doing an NIP...

17 Loka 202337min

#104 - Adult with XXY - Melvin Amantiad 56

#104 - Adult with XXY - Melvin Amantiad 56

Melvin Amantiad was born and raised in Hawaii. When Melvin was in his early 20s (1980s for reference), he went in for a check-up for prostate cancer because he was having pain in his growing/stomach a...

3 Loka 20231h 5min

#103 - Mother of Boy with XXY - Tara Whitfield

#103 - Mother of Boy with XXY - Tara Whitfield

Tara Whitfield shares her story about her son Westin. Her first pregnancy ended in a miscarriage. When Tara was ten weeks pregnant, she opted for NIPT. Being a nurse, when the results came back positi...

19 Syys 20231h 4min

#101 - Parents of Boy with XXY - Amanda and Jonathan Korb

#101 - Parents of Boy with XXY - Amanda and Jonathan Korb

Amanda found out she was pregnant in 2020. Having a background in the OBGYN field, they did an NIPT because they wanted to know the gender of their child. Amanda went online to her medical account to ...

29 Elo 202346min

#100 - Adult with XXY - Daniel Sharp

#100 - Adult with XXY - Daniel Sharp

Daniel Sharp was overweight at 24 and went to the doctor to see if they had any answers to why. The doctor talked to Daniel about having low vitamin D levels and lower testosterone. She suspected he h...

22 Elo 202352min

#99 - Adult with XXY - Nick Rodriguez 35

#99 - Adult with XXY - Nick Rodriguez 35

Nick Rodriguez has had his own contracting business since the start of the pandemic. He plays semi-professional football as an offensive tackle, and his team won the state championship. When Nick was ...

15 Elo 20231h 13min

#98 - Parents of Boy with XXY - Mariah and Romone

#98 - Parents of Boy with XXY - Mariah and Romone

Mariah, 25, and Romone, 27, learned about Klinefelter syndrome at their 20-week appointment after their results from NIPT testing. They opted out of doing an amnio and waited till birth to confirm. Wh...

8 Elo 202352min

#97- Adult with XXY - Deepak Kamnani, age 43

#97- Adult with XXY - Deepak Kamnani, age 43

Deepak's family is originally from India. He was born in Brooklyn and raised in West Texas. At age 28, he and his wife started trying to have kids. After visiting over 14 doctors, many told him he did...

1 Elo 20231h 14min

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