Amber's Year in Books 2023

For years we were told that diet doesn’t matter in inflammatory bowel disease (IBD). We know now that diet is important in IBD. What’s still not clear is how we should be thinking about it in terms of management. Helena Murphy is a photographer, yoga teacher, and Crohn’s disease patient who brought her skills and experience to writing a book entitled, "The Plant-Based Crohn’s and Colitis Cookbook." She shares her secret to publishing her book, as well as how her life has changed since being diagnosed with Crohn’s disease. Find Helena Murphy at: Instagram: @helenarose_photography Web: Helena Rose Murphy.net Buy: The Plant-Based Crohn’s and Colitis Cookbook Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD127 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

31 Tammi 202337min

Caring for pelvic health is important for people of all genders who live with an inflammatory bowel disease (Crohn’s disease or ulcerative colitis). Dr. Amanda Olson, who holds a doctorate in physical therapy and is the President and Chief Clinical Officer for Intimate Rose, has dedicated her professional life to helping people improve their pelvic health. Learn more about pelvic therapy and how she has developed resources and tools to help people living with all types of conditions. Find Amanda Olson, DPT, PRPC at: Instagram: @intimaterose Twitter: @IntimateRose Web: Intimate Rose Buy: Restoring The Pelvic Floor: How Kegel Exercises, Vaginal Training, And Relaxation, Solve Incontinence, Constipation, And Heal Pelvic Pain To Avoid Surgery Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @michaelandrewcooney Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD126 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

24 Tammi 202328min

What did you read over the past year? If you made a reading goal: did you hit it? The books I read this year ranged from self-help to true crime to science fiction. Hear more about some of the books I enjoyed in 2022 (and in the year after I was diagnosed with ulcerative colitis) and if you’ll want to pick them up for yourself. Creativity: A Short and Cheerful Guide The Comfort Book Born a Crime: Stories from a South African Childhood It’s Trevor Noah: Born a Crime: Stories from a South African Childhood (Adapted for Young Readers) The House in the Cerulean Sea Killers of the Flower Moon: The Osage Murders and the Birth of the FBI The Case of the Murderous Dr. Cream: The Hunt for a Victorian Era Serial Killer Dune The Scarlet Letter Slapstick or Lonesome No More!: A Novel Hocus Pocus Turtles All the Way Down Project Hail Mary: A Novel Artemis: A Novel Feed Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @michaelandrewcooney Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https:/bit.ly/AIBD125 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

26 Joulu 202225min

For some people living with Crohn’s disease or ulcerative colitis, the disease puts roadblocks in the way when it comes to going to school, having a career, and participating in sports. For Lauren Thibodeau, a diagnosis of ulcerative colitis led to a complication of medical catatonia, which derailed her life and her career as a college golfer. However, with her family, her medical team, and her teammates around her, she made her way back to the golf course and in fact, wound up playing better than ever. Lauren shares what kept her motivated during the long and difficult recovery and how it changed her perspective on her golf game as well as her outlook on life. Find Lauren Thibodeau at: Instagram: @lauren_t_99 Twitter: @LTgolf247 LinkedIn: Lauren Thibodeau Awards: Lauren Thibodeau Named Class of 2022 Honda Inspiration Award Winner, Thibodeau Wins Kim Moore Spirit Award Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @michaelandrewcooney Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https:/bit.ly/AIBD124

13 Joulu 202237min

Does living with Crohn’s disease or ulcerative colitis make a person more resilient? And is resilience something that should be a part of management plan for people with inflammatory bowel disease (IBD) or other chronic illnesses? Mara Shapiro, healthcare journalist and Crohn’s disease patient, has had no other choice but to find a way towards resilience in her life, having lived through grief and loss early in life, followed by the diagnosis of several chronic illnesses. She provides deep insight on coping mechanisms and resilience, including the various ways we can look at these ideas to fit our own needs. Find Mara Shapiro (and Morty) at: Instagram: @marajshapiro and @morty.the.red.corgi Twitter: @marajshapiro Trellus Health: Mara’s Journey Crohn's and Colitis Young Adult Network: Interpretations of "The Road Not Taken" by Robert Frost Blogspot: A Reflection on 2020 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney ( mix, sound design, and theme music) at: Facebook: @michaelandrewcooney Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https:/bit.ly/AIBD123

21 Marras 202235min

When it comes to people with Crohn’s disease or ulcerative colitis serving in the military, the usual policy is that the two things are incompatible. The reason being that people living with an inflammatory bowel disease (IBD) need care and treatments that are incompatible with being deployed. However, sometimes there are other considerations, as Dr Daniel Rausa describes. Dr Rausa was diagnosed with Crohn’s disease while serving in the Navy, and he has advice for people who live with an IBD and want to serve or who want to pursue a medical career. He also describes why it’s so important to follow up and stay on top of transition of care when leaving military service. Find Daniel Rausa, DO at: Twitter: https://twitter.com/danielrausado Find Amber J Tresca at: AboutIBD.com: http://aboutibd.com/ Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Facebook: https://www.facebook.com/aboutIBD Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney Theme music, IBD Dance Party, is from ©Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single Episode transcript and more information at: https:/bit.ly/AIBD122

8 Marras 202227min

What if we knew which patients would have severe Crohn’s disease or ulcerative colitis? And which wouldn’t? How about if we could tell which drug would work best in which patient? Knowing these things would change how inflammatory bowel disease (IBD) is diagnosed and treated. Plus, more importantly: it would improve lives. Dr Andres Hurtado-Lorenzo, Vice President of Translational research and IBD Ventures at the Crohn's and Colitis Foundation explains biomarkers and how they may play into the future of how IBD is diagnosed, managed, and treated. Resources: Crohn’s & Colitis Foundation:https://www.crohnscolitisfoundation.org/ IBD Plexus:https://www.crohnscolitisfoundation.org/research/current-research-initiatives/ibd-plexus/about RISK Study:https://www.crohnscolitisfoundation.org/research/current-research-initiatives/pediatric-risk-stratification IBD Ventures:https://www.crohnscolitisfoundation.org/research/grants-fellowships/entrepreneurial-investing/portfolio Olink: https://www.olink.com Foundation for the National Institutes of Health: https://www.fnih.org Genedata: https://www.com Glycominds: https://www.glycominds.com/blood-tests-1 PredictImmune:https://www.predictimmune.com/ Research: Honig G, Heller C, Hurtado-Lorenzo A. Defining the Path Forward for Biomarkers to Address Unmet Needs in Inflammatory Bowel Diseases. Inflamm Bowel Dis. 2020;26(10):1451-1462. doi:10.1093/ibd/izaa210. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7500521/pdf/izaa210.pdf Honig G, Larkin PB, Heller C, Hurtado-Lorenzo A. Research-Based Product Innovation to Address Critical Unmet Needs of Patients with Inflammatory Bowel Diseases. Inflamm Bowel Dis. 2021;27(Suppl 2):S1-S16. doi:10.1093/ibd/izab230. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8922161/pdf/izab230.pdf Kugathasan S, Denson LA, Walters TD, et al. Prediction of complicated disease course for children newly diagnosed with Crohn's disease: a multicentre inception cohort study. Lancet. 2017;389(10080):1710-1718. doi:10.1016/S0140-6736(17)30317-3. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5719489/pdf/nihms923305.pdf Biasci D, Lee JC, Noor NM, et al. A blood-based prognostic biomarker in IBD. Gut. 2019;68(8):1386-1395. doi:10.1136/gutjnl-2019-318343. https://www.predictimmune.com/wp-content/uploads/2020/09/Biasci-et-al-A-blood-based-prognostic-biomarker-in-IBD-Gut-2019.pdf de Bruyn M, Ringold R, Martens E, et al. The Ulcerative Colitis Response Index for Detection of Mucosal Healing in Patients Treated With Anti-tumour Necrosis Factor. J Crohns Colitis. 2020;14(2):176-184. doi:10.1093/ecco-jcc/jjz125. https://doi.org/10.1093/ecco-jcc/jjz125 Find Amber J Tresca at: AboutIBD.com: http://aboutibd.com/ Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Facebook: https://www.facebook.com/aboutIBD Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney Theme music, IBD Dance Party, is from ©Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single

11 Heinä 202229min

There aren’t as many men who are vocal in the inflammatory bowel disease (IBD) space as there are women. Crohn’s disease and ulcerative colitis affect men as often as they do women, but fewer men seem comfortable being public about their disease.   That’s why Carlos “CJ" Cabrera, who also goes by CJ Papuro, entered the IBD community after his diagnosis of Crohn’s. He gives an overview of how difficult it was to be diagnosed as a US veteran using the Veterans Health Administration, his struggles with finding his way with nutrition, the ways in which IBD has affected him as a man, and his advice for other men.   Concepts discussed on this episode include: Athletic Greens — AG1: https://athleticgreens.com/ibdpod Fragmented Care and IBD: Outcomes in U.S. Veterans: https://ihpi.umich.edu/news/fragmented-care-and-ibd-outcomes-us-veterans The Incidence and Prevalence of Inflammatory Bowel Disease Among U.S. Veterans: A National Cohort Study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3972034/ Maltodextrin, Modern Stressor of the Intestinal Environment: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6409436/ How IBD Affects Fertility in Men: https://www.verywellhealth.com/how-ibd-affects-fertility-in-men-4125878 How to Recognize and Diagnose Crohn’s Disease in Men: https://www.verywellhealth.com/crohns-symptoms-male-5215367 Arthritis and Inflammatory Bowel Disease: https://www.verywellhealth.com/arthritis-and-inflammatory-bowel-disease-1941772 Should You Exercise If You Have IBD?: https://www.verywellhealth.com/exercising-with-ibd-4582068 Find CJ Papuro at: Instagram: https://www.instagram.com/papuro Instagram: https://www.instagram.com/papurosmokes Instagram: https://www.instagram.com/chill.ghost YouTube: https://www.youtube.com/c/Papuro   Find Amber J Tresca at AboutIBD.com: http://aboutibd.com/ Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Facebook: https://www.facebook.com/aboutIBD Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Credits: Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney Theme music, IBD Dance Party, is from Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single   Episode transcript and more information at: https:/bit.ly/AIBD120

27 Kesä 202232min