Research, Resilience, and JIA:  Dr. Kaleb’s Journey
Arthritis Life13 Syys 2024

Research, Resilience, and JIA: Dr. Kaleb’s Journey

Through his experiences, Dr. Kaleb offers practical advice on navigating life with rheumatoid arthritis, focusing on self-management strategies like getting enough rest and using ergonomic tools.

He and Cheryl also dive into pain management, discussing evolving research on the potential benefits of cannabis. Dr. Kaleb’s personal insights into balancing work and life offer hope for finding purpose and joy despite the challenges of living with arthritis. Together, they emphasize the importance of living meaningfully through activities like board games, time with family, and staying connected to a supportive community.

Episode Themes:
  • Personal Experiences and Resilience: Dr. Kaleb’s shares his personal journey with juvenile idiopathic arthritis, from diagnosis at age 3 to today.
  • Self-Management & Lifestyle: Cheryl & Dr. Kaleb discuss strategies for managing physical pain through ergonomic tools, proper footwear, and weight management.
  • Importance of Sleep: The critical role of good sleep in managing chronic illness, including the impact of sleep apnea and the benefits of CPAP therapy.
  • Managing a dual role of patient and researcher: Dr. Kaleb reflects on his decision to “go public” with his diagnosis of JIA after being known as an arthritis researcher, and discusses the pros and cons of sharing your story publicly
  • Cannabis and Pain Management: The evolving research and patient experiences with cannabis as a tool for managing chronic pain, despite its legal and research limitations.
  • Misinformation and Evidence-Based Care: The challenge of navigating biased or incomplete information about treatments and the importance of relying on evidence-based medicine.
  • Arthritis Research and the Role of Learning from the Patient’s lived experience: Dr Kaleb explains the importance of the FORWARD databank.com for ongoing research to improve patient outcomes.
  • Entertainment and Personal Interests: The role of hobbies, such as board games and movies, in providing enjoyment and coping with chronic illness.
Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

For full episode details include a transcript and video:

Go to the episode page on the Arthritis Life Website.


Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Jaksot(213)

Body Weather: Making Sense of Chronic Illness in an Unpredictable Body

Body Weather: Making Sense of Chronic Illness in an Unpredictable Body

She shares her complex diagnostic journey across multiple autoimmune and inflammatory conditions, highlighting the uncertainty and overlap many patients experience. Cheryl and Lorraine discuss shiftin...

21 Huhti 1h 4min

Introducing New Rheum to THRIVE Facilitators Gittel Aguilar & Eileen!

Introducing New Rheum to THRIVE Facilitators Gittel Aguilar & Eileen!

Eileen and Gittel talk about why they’re passionate about leading support spaces, what those groups are really like (spoiler: welcoming, not intimidating), and how connection can make a huge differenc...

15 Huhti 46min

Making Movement Accessible with Inflammatory Arthritis, with Jamie Boder

Making Movement Accessible with Inflammatory Arthritis, with Jamie Boder

The conversation also dives into the emotional side of chronic illness, including fear of movement, the importance of interoception (body awareness), and how to avoid the boom–bust cycle of overdoing ...

2 Huhti 59min

Rheumer Has It:  Myths and Misconceptions About Arthritis Research: What Patients Should Know

Rheumer Has It: Myths and Misconceptions About Arthritis Research: What Patients Should Know

Together, we walk through how to find reputable research, what “peer-reviewed” really means, and why one exciting study doesn’t equal a proven treatment. Dr. Li also explains key concepts like plain l...

26 Maalis 34min

What’s it Like to be on Methotrexate for Autoimmune Arthritis?  (Encore Episode)

What’s it Like to be on Methotrexate for Autoimmune Arthritis? (Encore Episode)

They also  reflect on how they’ve navigated the ups and downs of chronic illness life and share how grief and joy can co-exist. They also highlight the importance of  finding a supportive community wi...

19 Maalis 1h 15min

Building a Healthier Relationship with Food while Living with Rheumatoid Arthritis (with Dietitian Cristina Montoya)

Building a Healthier Relationship with Food while Living with Rheumatoid Arthritis (with Dietitian Cristina Montoya)

Cristina and Cheryl also discuss Cristina’s new GLOW framework: Grow gut diversity, Lower inflammation, Optimize energy, and Work with your body compassionately. The conversation also covers gut healt...

12 Maalis 54min

RA, Cancer, and Starting Over: Yasmin’s Story of Resilience

RA, Cancer, and Starting Over: Yasmin’s Story of Resilience

Yasmin also shares what it was like to navigate multiple major health crises at once, including serious GI symptoms and an unexpected breast cancer diagnosis, and how it all impacted her mental health...

5 Maalis 49min

Introducing Chrissy, the newest Rheum to THRIVE Certified Facilitator!

Introducing Chrissy, the newest Rheum to THRIVE Certified Facilitator!

Cheryl and Chrissy also do a deep dive into the Rheum to THRIVE program and discuss their excitement over Chrissy taking on a new role as the lead facilitator of an upcoming cohort.  Chrissy’s facilit...

26 Helmi 1h

Suosittua kategoriassa Koulutus

rss-murhan-anatomia
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
psykologia
adhd-podi
rss-rahamania
rss-valo-minussa-2
rss-tietoinen-yhteys-podcast-2
rss-narsisti
kesken
rss-liian-kuuma-peruna
rss-duodecim-lehti
rahapuhetta
rss-vapaudu-voimaasi
rss-niinku-asia-on
rss-psykalab
rss-luonnollinen-synnytys-podcast
leikitaanko-laakaria
filocast-filosofian-perusteet
rss-monarch-talk-with-alexandra-alexis