Episode 18: CFNZ Lisa Burns

Episode 18: CFNZ Lisa Burns

Ingrid chats to CFNZ Chief Executive, Lisa Burns. They discuss what CFNZ does for CFers and their families throughout their lives and what the organisation's plans are for the future to make sure no one is left behind now that Trikafta is funded. There's still no cure, and not everyone can take Trikafta, so CFNZ want all in the community to know that they are there for everyone. Listen to end to hear an exclusive fundraiser coming up from Lisa for Sweatember!


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Jaksot(20)

Episode 17: Wrestler

Episode 17: Wrestler

Ingrid chats to Dustin Raynor, better known as professional wrestler Dustin Bozworth. Dustin shares his story living with cystic fibrosis from childhood, to pro wrestling, to reality TV on ‘Stone Cold...

10 Heinä 202329min

Episode 16: Hospital

Episode 16: Hospital

Ingrid shares their journey during a recent hospital admission and Orson gives his views on the whole adventure

2 Heinä 202328min

Episode 15: Bella Powell

Episode 15: Bella Powell

Ingrid sits down with Bella Powell, a young woman with CF who was the first in New Zealand to get Trikafta thanks to the late Sir Bob Elliott – who gave her this gift of life during his final months b...

27 Maalis 20231h 10min

Episode 14: Journalist, Patrick Gower

Episode 14: Journalist, Patrick Gower

Ingrid sits down with the well-respected and much-loved New Zealand journalist Patrick Gower to talk about the part he played in highlighting the need for funding of Trikafta for New Zealanders living...

25 Helmi 202354min

Episode 13: Back to School

Episode 13: Back to School

Ingrid chats with Helen Ulyatt, mother to an active 9-year-old CFer called Sophia. They chat about how she prepped for starting school and all the fears and worries surrounding this milestone, as well...

23 Tammi 202344min

Episode 12: Our diagnosis story

Episode 12: Our diagnosis story

We discuss the journey to diagnosis for our son Orson at six months old. From pregnancy and birth, tests, diagnosis and processing the news. It's emotionally a highly charged episode but we end up lau...

19 Loka 202234min

Episode 11: Never Better

Episode 11: Never Better

In this episode, Ian and I review the brilliant film Never Better and chat with its writer-director Julianne Fox. Julianne, who has CF herself, filmed Never Better in late 2020 and received great revi...

6 Syys 202240min

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