Episode 55: Minority Inclusion & MS -- We are illmatic with Victoria Reese
RealTalk MS2 Loka 2018

Episode 55: Minority Inclusion & MS -- We are illmatic with Victoria Reese

A lot of people visit the RealTalk MS website to listen to each podcast episode. I wanted to make that easier to do, so last week I released the RealTalk MS app for iOS or Android smartphones and tablets. The app will always have the latest episode of RealTalk MS cued up and ready for you to listen to, and it also lets me share all kinds of bonus content with you. Head to the Apple App Store to download the iOS version of the app, or the Google Play Store to download the Android version of the app. It's the best way to stay connected to the podcast! And speaking of staying connected to the podcast, next week, the European Committee for Treatment and Research in Multiple Sclerosis is hosting the ECTRIMS 2018 Congress in Berlin, Germany. It's the largest MS conference in the world. I'll be there, and you can look forward to special episodes of RealTalk MS, next Wednesday, Thursday, and Friday, October 10th, 11th, and 12th! You'll get the news, hear the interviews, and you'll be the first to get the research updates and announcements as they're being made at the largest MS conference in the world. And if you have the RealTalk MS app, you might even find some exclusive content from ECTRIMS that will only be available in the app. So next week, connect with the RealTalk MS podcast, and I'll do my best to connect you to ECTRIMS 2018.

My guest on this week's podcast is Victoria Reese, the founder of the We Are Illmatic campaign. Earlier this year, I had an opportunity to talk with Victoria about the concept of inclusion in the MS community, and how the We Are Illmatic campaign is out to change the face of MS.

We're also talking about a research review that reminds us how very bad smoking is for people living with MS, and the results of a 10-year study in the UK about the cost-effectiveness and clinical effectiveness of 4 MS disease modifying therapies. We'll give you the details behind the congressional funding for the National Neurological Conditions Surveillance System in the U.S. And if you're African-American and living with MS, we'll tell you about how you can participate in an MS genetics study being conducted by UCSF.

We have a lot to talk about! Are you ready for RealTalk MS?

___________

Download the RealTalk MS App! 1:26

RealTalk MS Will Be in Berlin for ECTRIMS 2018 2:27

MS Society UK Publishes Research Review on Smoking & MS 4:10

10-Year Study in UK Shows MS DMT Effective for RRMS 6:25

U.S. Congress Funds National Neurological Surveillance System 9:18

UCSF Recruiting African-Americans for MS Genetic Study 13:09

Interview with Victoria Reese 16:56

___________

LINKS
If your podcast app doesn't show these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Link Between Smoking & MS Clearer Than Ever

Helpline@mssociety.org.uk (For questions about smoking & MS)

Assessing the Long-Term Effectiveness of Interferon-beta and Glatiramer Acetate in Multiple Sclerosis: Final 10-Year Results from the UK Multiple Sclerosis Risk-Sharing Scheme

Patient Groups Applaud Spending Bill That Funds Important Neuro Data System

UCSF African-American MS Genetic Study Intake Survey

msdb@ucsf.edu (For questions about UCSF African-American MS Genetic Study)

We Are Illmatic

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 55
Hosted By: Jon Strum
Guests: Victoria Reese

Tags: MS, MultipleSclerosis, weareillmatic, ECTRIMS2018, MSSocietyUK, MSActivist, UCSF, RealTalkMS

Jaksot(505)

RealTalk MS Episode 9: MS & Depression

RealTalk MS Episode 9: MS & Depression

Experts estimate that about 50% of the people living with MS are impacted by depression. And left untreated, depression can darken your entire outlook on the world. It has a way of making everything l...

14 Marras 201722min

RealTalk MS Episode 8: The MS MOSAIC Study

RealTalk MS Episode 8: The MS MOSAIC Study

This week's guests are Doctors Lee Hartswell and Katherine Heller, the co-primary investigators of the MS MOSAIC study from Duke University. Everyone listening to our podcast is eligible to participat...

7 Marras 201727min

RealTalk MS Episode 7: ECTRIMS Round-Up

RealTalk MS Episode 7: ECTRIMS Round-Up

Last week, more than 9,000 MS research scientists, physicians, and pharmaceutical industry experts attended ECTRIMS-ACTRIMS, the largest annual international MS research conference in the world. And w...

31 Loka 201718min

RealTalk MS Episode 6: Being an MS Activist with Heather Fargo

RealTalk MS Episode 6: Being an MS Activist with Heather Fargo

This week, we're talking about MS Activism with the former mayor of Sacramento, California and current MS Activist, Heather Fargo. In last week's podcast, we talked about the prescription drug price t...

24 Loka 201723min

RealTalk MS Episode 5: It's All About MS Research

RealTalk MS Episode 5: It's All About MS Research

This week, RealTalk MS is all about MS research. We often hear about some of the important outcomes of MS research. New drugs, like Ocrevus, are introduced. New information, like the connection betwee...

17 Loka 201724min

RealTalk MS: Episode 4

RealTalk MS: Episode 4

This week's episode focuses on some of the cutting edge research being done in the Progressive MS arena. Jon's guest, Dr. Tim Coetzee, Chief Advocacy, Services & Research Officer at the National Multi...

10 Loka 201727min

RealTalk MS: Episode 3

RealTalk MS: Episode 3

In this week's podcast, we're talking to Dr. Lilyana Amezcua, the lead investigator in a new research study that looks at how genetics and culture can impact the severity of MS among Hispanic-American...

3 Loka 201724min

RealTalk MS: The Latest Threat To Healthcare in America

RealTalk MS: The Latest Threat To Healthcare in America

Join host Jon Strum as he talks about the serious threat that the Cassidy-Graham healthcare bill poses to the MS community. Jon is joined by former Representative Donna Edwards, who worked to pass the...

26 Syys 201724min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
tiedenaiset-podcast
vakeva-elama-viisaampi-mieli-vahvempi-keho
puhu-muru
katilon-kahvitunti
rss-pitaisko-erota
meditaatiot-suomeksi
rss-pt-paahtio
audio-sport-juoksu
rss-kuumilla-aalloilla
terapiassa
selviytyjat-tarinoita-elamasta
junnut-pelissa
rss-mighty-finland-podcast
paritellen
rss-nautinto
rss-narsisti
rss-kyykkya-ja-kuoharia