Episode 80: Access to Affordable MS Medications with MS Activist Diane Whitcraft
RealTalk MS4 Maalis 2019

Episode 80: Access to Affordable MS Medications with MS Activist Diane Whitcraft

My guest this week is Diane Whitcraft, a retired middle school teacher who had been taking the same MS prescription medication for more than 20 years. But once Diane retired and her health insurance changed, that same medication became unaffordable. Diane traveled to Washington D.C. last month, as Wisconsin Senator Tammy Baldwin's guest at the President's State of the Union address. She is back in our nation's capitol this week, speaking at the National MS Society's Public Policy Conference about the importance of having access to affordable MS prescription medications. Senator Tammy Baldwin (right) and Diane Whitcraft We're also talking about the official statement on stem cell therapy for MS by The American Society for Blood & Marrow Transplantation. We'll tell you about a new study that measured the impact of diet and other lifestyle factors on MS progression, you'll hear about a different study that highlighted the large percentage of people who are being misdiagnosed with MS, and you'll learn how some new emojis will help to de-stigmatize disability. We have a lot to talk about! Are you ready for RealTalk MS?! ___________

It's Our Day on the Hill :57

The American Society for Blood & Marrow Transplantation Makes an Official Statement About Stem Cell Therapy for MS 2:48

STUDY: The Impact of Diet & Lifestyle Factors on MS Progression 5:47

STUDY: 1 in 5 Patients Referred to 2 Academic MS Centers Are Misdiagnosed 8:17

How New Emojis Can Help De-Stigmatize Disability 5:47

My Interview with MS Activist Diane Whitcraft 12:36

Join the RealTalk MS Conversation 28:43

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jonstrum@RealTalkMS.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

Autologous Hematopoietic Cell Transplantation for Treatment-Refractory Relapsing Multiple Sclerosis: Position Statement From the American Society For Blood and Marrow Transplantation

Dietary and Lifestyle Factors in Multiple Sclerosis Progression: Results from a 5-Year Longitudinal MRI Study

Incidence of Misdiagnosis of Multiple Sclerosis in Referrals to Two Academic Centers

Preview the New Emojis That Will Help to De-Stigmatize Disability

National Multiple Sclerosis Society: Advocate For Change

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 80
Hosted By: Jon Strum
Guest: Diane Whitcraft

Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, MSPPC19, RealTalkMS

Jaksot(503)

Episode 433: Our Most Important Conversations of 2025 with Dr. John Corboy, Dr. Mikael Simons, Dr. John DeLuca, and Dr. Stehen Krieger

Episode 433: Our Most Important Conversations of 2025 with Dr. John Corboy, Dr. Mikael Simons, Dr. John DeLuca, and Dr. Stehen Krieger

As the year draws to a close, we wanted to share some of the most compelling conversations we've had over the past 12 months. And rather than make my own picks, we went through the hundreds of emails ...

15 Joulu 202543min

Special Episode: Guiding the Future of MS Care: MS21 Consensus Recommendations for Improving MS Care to Relieve the Burden of Disease

Special Episode: Guiding the Future of MS Care: MS21 Consensus Recommendations for Improving MS Care to Relieve the Burden of Disease

This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States ...

11 Joulu 202514min

Episode 432: Working With a Health & Wellness Coach with Amy Behimer

Episode 432: Working With a Health & Wellness Coach with Amy Behimer

Michael Jordan never won an NBA championship until he was paired with the right coach. Then, he won six. Could working with a coach change your MS journey? In this week's episode, health & wellness c...

8 Joulu 202540min

Special Episode: I'm the First Participant in a CAR-T Cell Therapy Clinical Trial with Jan Janisch-Hanzlik

Special Episode: I'm the First Participant in a CAR-T Cell Therapy Clinical Trial with Jan Janisch-Hanzlik

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In this final episode of this series, you'll meet Jan Janisch-...

4 Joulu 202520min

Episode 431: When a Teenager Becomes a Caregiver For a Parent With MS with Michaela Janssen Pohl

Episode 431: When a Teenager Becomes a Caregiver For a Parent With MS with Michaela Janssen Pohl

At the age of 14, Michaela Janssen Pohl became a caregiver for her mother, who lives with MS. I think most of us can agree that just being a teenager carries with it more than enough challenges. Thos...

1 Joulu 202534min

Episode 430: Navigating Winter Weather When You're Living with MS with Dr. James Stark

Episode 430: Navigating Winter Weather When You're Living with MS with Dr. James Stark

Almost everyone with MS is aware of their sensitivity to heat. But cold weather presents a whole different set of challenges that we don't always think about. This week, I'm talking with Dr. James Sta...

24 Marras 202536min

Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In today's episode, you'll meet two participants from the TEAM...

20 Marras 202516min

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Being a caregiver for a loved one with MS isn't an easy job. And, while it may consume hours of your time, often, it's not your only job. Many caregivers are the only family members bringing in an inc...

17 Marras 202530min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
psykopodiaa-podcast
tiedenaiset-podcast
voi-hyvin-meditaatiot-2
vakeva-elama-viisaampi-mieli-vahvempi-keho
rss-pitaisko-erota
rss-pt-paahtio
rss-narsisti
puhu-muru
rss-kuumilla-aalloilla
meditaatiot-suomeksi
selviytyjat-tarinoita-elamasta
terapiassa
rss-nautinto
junnut-pelissa
rss-uplevel-by-sonja-hannus
rss-addiktit
rss-mighty-finland-podcast
rss-en-saa-unta
rss-fitissa-podcast