Episode 81: Almost One Million! The Prevalence of MS with National MS Society CEO Cyndi Zagieboylo, Dr. Bruce Bebo, & Dr. Ruth Ann Marrie
RealTalk MS12 Maalis 2019

Episode 81: Almost One Million! The Prevalence of MS with National MS Society CEO Cyndi Zagieboylo, Dr. Bruce Bebo, & Dr. Ruth Ann Marrie

It's MS Awareness Week! And the single event that is likely going to have the most impact in raising awareness of MS in the United States is the recent announcement of the MS Prevalence Study results. The results of this study corrected the decades old notion that there were only about 400,000 people living with MS in the United States. We now know that the number of people living with MS in the U.S. is closer to one million. More than twice as many as had been previously estimated. In this special RealTalk MS episode, we're going to look at MS prevalence from a number of different perspectives. My guests include National MS Society President and CEO, Cyndi Zagieboylo, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and MS Prevalence Study Investigator, Dr. Ruth Ann Marrie.
But what about people who are living with MS? What are their thoughts about being one in a million? We're also talking with MS Activists Tami Ryan, Karen Jackson, and Dan & Jennifer Diggman. We have a lot to talk about! Are you ready for RealTalk MS?! ___________

It's MS Awareness Week :22

My Interview with National MS Society CEO, Cyndi Zagieboylo 3:40

My Interview with National MS Society Executive Vice-President of Research, Dr. Bruce Bebo 12:32

My Interview with MS Prevalence Study Investigator, Dr. Ruth Ann Marrie 24:18

Comments about the MS Prevalence Study from MS Activists Tami Ryan, Karen Jackson, and Dan & Jennifer Digmann 34:34

Join the RealTalk MS Conversation 38:13

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jonstrum@RealTalkMS.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

The Prevalence of MS in the United States: A Population-Based Estimate Using Health Claims Data

A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with MS

Validation for an Algorithm For Identifying MS Cases in Administrative Health Claims Datasets

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 81
Hosted By: Jon Strum
Guests: Cyndi Zagieboylo, Dr. Bruce Bebo, Dr. Ruth Ann Marrie, Tami Ryan, Lisa Jackson, Dan & Jennifer Digmann

Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, TwiceAsMany, MSPrevalence, RealTalkMS

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Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

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Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Being a caregiver for a loved one with MS isn't an easy job. And, while it may consume hours of your time, often, it's not your only job. Many caregivers are the only family members bringing in an inc...

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Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

As researchers continue to learn about MS, it becomes clear that you can change the trajectory of your MS journey and improve your quality of life by making smart lifestyle choices. Quitting smoking a...

10 Marras 202532min

Episode 427: Science-Based Vaccine Guidance for People Living with MS with Dr. Lisa Doggett

Episode 427: Science-Based Vaccine Guidance for People Living with MS with Dr. Lisa Doggett

When you're living with a chronic condition like MS, you want to be sure you're doing everything you can to preserve and promote good health. And, right now, you may be feeling confused about whether ...

3 Marras 202527min

Episode 426: Fighting Her Way Through the Health Insurance Maze with Cassandra Ashby

Episode 426: Fighting Her Way Through the Health Insurance Maze with Cassandra Ashby

Some disease-modifying therapies can change the trajectory of your MS journey. But gaining access to those medications isn't always as easy or straightforward as it should be. In the United States, in...

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Episode 425: The ECTRIMS 2025 Deep Dive with Dr. Bruce Bebo

Episode 425: The ECTRIMS 2025 Deep Dive with Dr. Bruce Bebo

Just about a month ago, 9,600 researchers, clinicians, and representatives from patient advocacy organizations gathered in Barcelona for the European Committee on Treatment and Research in MS annual s...

20 Loka 202533min

Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik

Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik

Jan Janisch-Hanzlik lives with MS and is a participant in one of the clinical trials evaluating the safety and efficacy of CAR-T cell therapy for MS. Jan is the first person in the world to receive th...

13 Loka 202533min

Special Episode: The Risks and Rewards of Participating in Clinical Trials with Dr. Kathy Zackowski and Mimi Brown

Special Episode: The Risks and Rewards of Participating in Clinical Trials with Dr. Kathy Zackowski and Mimi Brown

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In today's episode, we're exploring the risks and rewards of...

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