RealTalk MS20 Touko 2019

Episode 90: The MS Association of America with President & CEO Gina Murdoch

The Multiple Sclerosis Association of America, or MSAA, provides programs and resources designed to improve the lives of people affected by MS. Whether it's financial assistance for an MRI exam, a new computer, mobility equipment, or even a cooling vest, the MSAA can help. My guest today is Gina Murdoch, the President and CEO of the MSAA, and we're talking about the organization's almost 50-year history, their shared management philosophy of living with MS, and we're taking a deeper dive into into some of their remarkable programs.

We're also talking about the Progressive MS Alliance Scientific Steering Committee Meeting that begins tomorrow in Copenhagen, Denmark. You'll hear about the Patient 360 meeting that EMD Serono hosted last week in Washington, D.C., and I'll tell you why that meeting was so special to me.

We're talking about the just announced $100,000 research grant to investigate the challenges faced by people of color who are living with MS and their caregivers. You'll learn about the special search engine that matches MS patients with financial support for disease-modifying therapy.

We'll tell you about 2 new programs from Can-Do MS, focused on young adults who are living with MS and people who are living with secondary progressive MS. And you'll find out how you can be my special guest on the 100th episode of RealTalk MS.

We have a lot to talk about. Are you ready for RealTalk MS??!

Progressive MS Alliance Scientific Steering Committee Meeting in Copenhagen :22

EMD Serono Hosts Patient 360 Meeting 2:27

Accelerated Cure Project & Us Against Alzheimer's Receive $100,000 Grant to Study Challenges Faced by People of Color Living with MS & Alzheimer's Disease 6:07

MAT Can Connect You to Financial Support for Disease-Modifying Therapy 7:53

Can-Do MS Announces Programs for Young Adults Living with MS and People Living with Secondary Progressive MS 9:58

Finalists Announced for Lyfebulb-Celgene Addressing Unmet Needs in MS: Innovation Challenge 12:22

My Interview with MSAA's Gina Murdoch 16:13

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

International Progressive MS Alliance

Multiple Sclerosis Association of America

MAT (Medicine Assistance Tool)

Can-Do MS Young Adults Take Charge Program

Can-Do MS Secondary Progressive MS Webinar Series

Celgene Lyfebulb MS Innovation Challenge

Be My Guest on RealTalk MS Episode #100

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 90
Hosted By: Jon Strum
Guest: Gina Murdoch

Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, CanDoMS, MSAA, EMDSerono, Celgene, Lyfebulb, Caregiving, RealTalkMS

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Episode 471: Navigating an MS Relapse with Dr. F. Gabriela Karolidis

Relapses make life with MS unpredictable. Understanding what they are, why they happen, and how best to manage them can make a relapse less scary and easier to navigate. This week, Dr. Gabriela Kar...

7 Syys 40min

Episode 470: 42 Marathons in 42 Days with Benji Wilkins

Wise men and women remind us that life is a marathon, and not a sprint. Joining us this week is Benji Wilkins. Benji is a magician in the U.K., and for 42 days this summer, his life was quite literall...

31 Elo 30min

Episode 469: Maintaining and Even Improving Cognitive Function If You're Living with MS with Dr. Anna Kratz

Cognitive changes in MS—fluctuations in processing speed, memory, and executive function—can significantly impact daily life, yet they're often misunderstood or overlooked in routine clinical exams. T...

24 Elo 43min

Episode 468: You've Been Given a 15% Chance of Living and Your Spouse Gets Diagnosed with MS with Kathleen Silva

Imagine your spouse or significant other has been diagnosed with MS...shortly after you were diagnosed with stage IV colon cancer, and given just a 15% chance of survival. All of a sudden, the roles o...

17 Elo 38min

Episode 467: Making Shared Decision-Making Work with Dr. Aliza Ben-Zacharia and Linda Lachman

If you Google the term "shared decision making", you'll find it defined as a collaborative process where patients and clinicians work together to select tests, treatments, and care plans based on clin...

10 Elo 33min

Episode 466: Everything You Ought to Know About Diet and MS with Dr. Tyler Titcomb

We get more listener emails about diet and MS than almost any other topic. If you're curious about how some of the well-known diets for MS actually stack up, or you're interested in understanding the ...

3 Elo 27min

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

During his fellowship in the United States, Dr. Avinash Chandra trained to become an MS specialist at a world-class MS center. Then he returned home to Nepal and discovered that MS was largely conside...

27 Heinä 37min

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

If you've spent any time at all living with or caring for someone with multiple sclerosis, you know that medical textbooks and information-filled websites can give us facts, figures, and symptoms, but...

20 Heinä 32min