Episode 112: The MSIF People with MS Forum with Dr. Laura Musambayi and Gabriela Hidalgo
RealTalk MS22 Loka 2019

Episode 112: The MSIF People with MS Forum with Dr. Laura Musambayi and Gabriela Hidalgo

I'm back from attending the MS International Federation's People With MS Forum in Athens, Greece, and it was a remarkable few days spent with some truly remarkable people. In this episode of RealTalk MS, you'll meet two of those remarkable people. First, we'll talk with Dr. Laura Musambayi, the founder of the MS Association of Kenya. Dr. Musambayi will share her experiences in a country of 50 million people, with just 20 neurologists, and no access to disease-modifying therapy. Then, you'll meet Gabriela Hidalgo, a Project Manager at Esclerosis Multiple España, who will tell us about a very successful program designed to reduce isolation and depression and re-connect people affected by MS with their lives. We're also talking about an article that got my attention last week. Professor Alan Thompson wrote that We Can Stop MS -- And This Is How. (HINT: He's 100% right!) We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Reporting Back from the MSIF People with MS Forum :22

We Can Stop MS -- And This Is How 2:15

My Conversation with Dr. Laura Musambayi 9:19

My Conversation with Gabriela Hidalgo 18:03

Subscribe to RealTalk MS 28:47

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review

MS International Federation

We Can Stop Multiple Sclerosis -- And This Is How

Donate Online to the National MS Society

Donate Online to the UK MS Society's #StopMS Campaign

Multiple Sclerosis Association of Kenya

Esclerosis Multiple España

Give RealTalk MS a Rating & Review

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 112
Hosted By: Jon Strum
Guests: Dr. Laura Musambayi and Gabriela Hidalgo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, StopMS, mssocietyuk, MSIntFederation, MSAssocKe, Esclerosiseme, RealTalkMS

Jaksot(504)

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Being a caregiver for a loved one with MS isn't an easy job. And, while it may consume hours of your time, often, it's not your only job. Many caregivers are the only family members bringing in an inc...

17 Marras 202530min

Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

As researchers continue to learn about MS, it becomes clear that you can change the trajectory of your MS journey and improve your quality of life by making smart lifestyle choices. Quitting smoking a...

10 Marras 202532min

Episode 427: Science-Based Vaccine Guidance for People Living with MS with Dr. Lisa Doggett

Episode 427: Science-Based Vaccine Guidance for People Living with MS with Dr. Lisa Doggett

When you're living with a chronic condition like MS, you want to be sure you're doing everything you can to preserve and promote good health. And, right now, you may be feeling confused about whether ...

3 Marras 202527min

Episode 426: Fighting Her Way Through the Health Insurance Maze with Cassandra Ashby

Episode 426: Fighting Her Way Through the Health Insurance Maze with Cassandra Ashby

Some disease-modifying therapies can change the trajectory of your MS journey. But gaining access to those medications isn't always as easy or straightforward as it should be. In the United States, in...

27 Loka 202532min

Episode 425: The ECTRIMS 2025 Deep Dive with Dr. Bruce Bebo

Episode 425: The ECTRIMS 2025 Deep Dive with Dr. Bruce Bebo

Just about a month ago, 9,600 researchers, clinicians, and representatives from patient advocacy organizations gathered in Barcelona for the European Committee on Treatment and Research in MS annual s...

20 Loka 202533min

Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik

Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik

Jan Janisch-Hanzlik lives with MS and is a participant in one of the clinical trials evaluating the safety and efficacy of CAR-T cell therapy for MS. Jan is the first person in the world to receive th...

13 Loka 202533min

Special Episode: The Risks and Rewards of Participating in Clinical Trials with Dr. Kathy Zackowski and Mimi Brown

Special Episode: The Risks and Rewards of Participating in Clinical Trials with Dr. Kathy Zackowski and Mimi Brown

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In today's episode, we're exploring the risks and rewards of...

10 Loka 202521min

Episode 423: Understanding Infections and MS with Dr. Robert Fox

Episode 423: Understanding Infections and MS with Dr. Robert Fox

From the earliest days of the COVID-19 pandemic, people living with MS have been justifiably concerned about how a COVID-19 infection might impact their MS. As the new "Stratus" strain of COVID-19 is ...

6 Loka 202533min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
vakeva-elama-viisaampi-mieli-vahvempi-keho
tiedenaiset-podcast
psykopodiaa-podcast
rss-pitaisko-erota
puhu-muru
terapiassa
rss-uplevel-by-sonja-hannus
junnut-pelissa
rss-narsisti
rss-kuumilla-aalloilla
katilon-kahvitunti
selviytyjat-tarinoita-elamasta
rss-rakas-mielenterveyteni
rss-duodecim-lehti
meditaatiot-suomeksi
rss-ehjaksi
rss-vapaudu-voimaasi
rss-ayurglow-harmoninen-elama