Episode 151: Managing MS Pain and Fatigue with Dr. Heidi Maloni
RealTalk MS20 Heinä 2020

Episode 151: Managing MS Pain and Fatigue with Dr. Heidi Maloni

Pain and fatigue are two of the most common and challenging symptoms of MS. These are the symptoms that can stop you from fully engaging in your life at work, at home, with friends, or family. My guest is Dr. Heidi Maloni. Dr. Maloni is a nurse practitioner and the National Clinical Nursing Director for the Multiple Sclerosis Center of Excellence East at the Veterans Affairs Medical Center in Washington, DC. And Dr. Maloni is an expert on treating pain and fatigue in MS. Dr. Maloni will share some best practices for managing MS-related pain, we'll talk about some specific medications that can help manage MS-related pain, and we'll also get into the effectiveness of cannabis-based products for managing pain. And when we talk about fatigue with Dr. Maloni, we'll talk about how to get your friends and family to stop telling you that you're probably just tired, and a nap will fix everything. We're also talking about why access to affordable healthcare isn't shouldn't be a partisan political issue and what gets lost in the conversation when it is. If you happen to be an African-American or Hispanic MS patient and you'd like to have a voice in the design of an important MS research study, we'll tell you how you can be a part of that study's Patient Advisory Group. It's an opportunity for the patient perspective to be part of the planning for this study. And it's an opportunity for you to be paid for your participation in that planning. We'll also tell you about Sidecar, a dramatic short film from SHIFT-MS that illustrates the physical and emotional burden that accompanies MS progression. And if you're an MS caregiver who would like to contribute to MS research, or you know someone who is, we'll tell you about an online survey just for you. We have a lot to talk about! Are you ready for RealTalk MS??!

Your access to healthcare shouldn't be a partisan issue, right? 2:25

Join the Patient Advisory Group for the CHIMES study 8:32

DUNK MS is going virtual and raising funds for MS research 10:24

SHIFT-MS debuts Sidecar, their latest short film 20:03

Are you an MS caregiver? There's an online survey for you 20:59

My Interview with Dr. Heidi Maloni 22:19

Share this episode 42:06

Please Support the National MS Society COVID-19 Response Fund 42:26

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/151

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

CHIMES Study Patient Advisory Group questionnaire

DUNK MS

SIDECAR: A SHIFT-MS film about the misapprehensions of advanced multiple sclerosis

Accelerated Cure Project for MS Survey: Caregiver Relationships with Healthcare Providers

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 151
Hosted By: Jon Strum
Guests: Dr. Heidi Maloni, Blake Arnet

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, DunkMS, RealTalkMS

Privacy Policy

Jaksot(505)

Episode 435: Revisiting ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

Episode 435: Revisiting ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

We're closing out the year by revisiting the most listened-to episode of RealTalk MS in 2025. And it shouldn't come as a major surprise that this year's most listened-to episode was our review of the ...

29 Joulu 202524min

Episode 434: Revisiting Managing Menopause While You're Managing MS with Dr. Riley Bove

Episode 434: Revisiting Managing Menopause While You're Managing MS with Dr. Riley Bove

The holiday season gives me the opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes in December to revisit the most popular conversations that I've had ove...

22 Joulu 202521min

Episode 433: Our Most Important Conversations of 2025 with Dr. John Corboy, Dr. Mikael Simons, Dr. John DeLuca, and Dr. Stehen Krieger

Episode 433: Our Most Important Conversations of 2025 with Dr. John Corboy, Dr. Mikael Simons, Dr. John DeLuca, and Dr. Stehen Krieger

As the year draws to a close, we wanted to share some of the most compelling conversations we've had over the past 12 months. And rather than make my own picks, we went through the hundreds of emails ...

15 Joulu 202543min

Special Episode: Guiding the Future of MS Care: MS21 Consensus Recommendations for Improving MS Care to Relieve the Burden of Disease

Special Episode: Guiding the Future of MS Care: MS21 Consensus Recommendations for Improving MS Care to Relieve the Burden of Disease

This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States ...

11 Joulu 202514min

Episode 432: Working With a Health & Wellness Coach with Amy Behimer

Episode 432: Working With a Health & Wellness Coach with Amy Behimer

Michael Jordan never won an NBA championship until he was paired with the right coach. Then, he won six. Could working with a coach change your MS journey? In this week's episode, health & wellness c...

8 Joulu 202540min

Special Episode: I'm the First Participant in a CAR-T Cell Therapy Clinical Trial with Jan Janisch-Hanzlik

Special Episode: I'm the First Participant in a CAR-T Cell Therapy Clinical Trial with Jan Janisch-Hanzlik

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In this final episode of this series, you'll meet Jan Janisch-...

4 Joulu 202520min

Episode 431: When a Teenager Becomes a Caregiver For a Parent With MS with Michaela Janssen Pohl

Episode 431: When a Teenager Becomes a Caregiver For a Parent With MS with Michaela Janssen Pohl

At the age of 14, Michaela Janssen Pohl became a caregiver for her mother, who lives with MS. I think most of us can agree that just being a teenager carries with it more than enough challenges. Thos...

1 Joulu 202534min

Episode 430: Navigating Winter Weather When You're Living with MS with Dr. James Stark

Episode 430: Navigating Winter Weather When You're Living with MS with Dr. James Stark

Almost everyone with MS is aware of their sensitivity to heat. But cold weather presents a whole different set of challenges that we don't always think about. This week, I'm talking with Dr. James Sta...

24 Marras 202536min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
psykopodiaa-podcast
voi-hyvin-meditaatiot-2
vakeva-elama-viisaampi-mieli-vahvempi-keho
tiedenaiset-podcast
katilon-kahvitunti
puhu-muru
rss-pt-paahtio
meditaatiot-suomeksi
rss-kuumilla-aalloilla
rss-pitaisko-erota
audio-sport-juoksu
junnut-pelissa
fitnessvastaanotto
terapiassa
rss-nautinto
paritellen
kehorauhaa
rss-mighty-finland-podcast
rss-kyykkya-ja-kuoharia