Episode 342: Behind the Scenes of an MS Research Study with Chiquita Shepard-Knight and Earl Sneed
RealTalk MS18 Maalis 2024

Episode 342: Behind the Scenes of an MS Research Study with Chiquita Shepard-Knight and Earl Sneed

We often discuss the results of MS research studies on this podcast. In order to get to those results, people living with MS have to step up and volunteer to participate. This week, you'll meet Chiquita Shepard-Knight and Earl Sneed, two participants in the TEAAMS study.

Chiquita and Earl will discuss how they discovered the TEAAMS study, what motivated them to get involved, what their experience as study participants was like, and what the results of the study were for them.

We'll also take you to Capitol Hill as we share conversations that we had during Hill Day at the National MS Society's Public Policy Conference.

It's MS Awareness Month, and we're sharing new videos that feature interviews with leading MS experts along with the thoughts and reactions of people living with MS.

And we'll tell you where you can catch the video replay of the International Progressive MS Alliance's webcast on emerging treatments for progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Tomorrow! The ACTRIMS Post-Forum Patient-Centered Webinar :22

This Week: The patient perspective on participating in an MS research study 1:38

Live! From the Natinal MS Society's Public Policy Conference 2:28

People with MS weign in on the impact of several ECTRIMS presentations 10:17

Catch the video replay of the International Progressive MS Alliance webcast 11:35

Chiquita Shepard-Knight and Earl Sneed discuss their experience participating in the TEAAMS study 12:11

Share this episode 27:18

Have you downloaded the free RealTalk MS app? 27:38

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/342

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

REGISTER: ACTRIMS Post-Forum Patient-Centered Webinar
https://fs2.formsite.com/1FItkk/tgx8tu3xg0/index

VIDEO: Dr. Jiwon Oh shares encouraging results from an extension study of Tolebrutinib, an investigational disease-modifying therapy. Then, two people living with MS share their thoughts about clinical trials and a precision medicine approach to treating MS
https://youtu.be/eWoZLF4bZmo

VIDEO: Dr. Anthony Feinstein discusses the outcome of the CogEx study, Then, two people living with MS share their thoughts about the impact of this study
https://www.youtube.com/watch?v=UtGtCnNkYOY

VIDEO: Dr. Annette Langer-Gould discusses the impact of other health conditions on people living with MS. Then, two people living with MS share their thoughts and experiences of managing their MS along with additional health conditions
https://www.youtube.com/watch?v=J83jlqMbsZo

VIDEO: Dr. Daniel Ontaneda discusses how artificial intelligence will impact MS treatment. Then, two people living with MS share their thoughts on the potential impact of AI on MS treatment and the future patient experience
https://www.youtube.com/watch?v=_fRLW69Xc1A

VIDEO: Dr. Robert Motl discusses the benefits of exercise for people living with MS. Then, two people living with MS share their thoughts on how exercise has impacted their MS journey
https://www.youtube.com/watch?v=oZDdp8JumFg

VIDEO: International Progressive MS Alliance Webcast Replay: Emerging Treatments for Progressive MS
https://www.youtube.com/watch?v=W4hxtl38MBQ

The TEAAMS Study
https://projectteaams.ahs.uic.edu

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 342
Guests: Chiquita Shepard-Knight and Earl Sneed

Privacy Policy

Jaksot(504)

Episode 422: From ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

Episode 422: From ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

Last week, over 9600 MS researchers and clinicians gathered in Barcelona for the European Committee for Treatment and Research in Multiple Sclerosis annual scientific congress -- ECTRIMS 2025. Minut...

29 Syys 202523min

Episode 421: Optimizing Your Brain Health with Nurse Practitioner Erin Wilkinson

Episode 421: Optimizing Your Brain Health with Nurse Practitioner Erin Wilkinson

Happy birthday to us! RealTalk MS is 8 years old today! It's hard for me to believe that the podcast I launched in 2017, with the goal of one day reaching 300 listeners, today reaches thousands of peo...

22 Syys 202542min

Special Episode: Dr. Aaron Boster Explains MS Clinical Trials

Special Episode: Dr. Aaron Boster Explains MS Clinical Trials

You're living with MS, and maybe you're thinking about participating in an MS clinical trial. But how do they work? Are they safe? What's the difference between Phase 1, 2, and 3 trials? What are the ...

17 Syys 202533min

Episode 420: A DIY Kit for Improving Your MS Journey with Julie Polisena

Episode 420: A DIY Kit for Improving Your MS Journey with Julie Polisena

Disease-modifying therapies are the cornerstone of MS treatment, but they're not the only piece of the puzzle. Beyond prescription medications, self-care that includes making healthy lifestyle choices...

15 Syys 202534min

Episode 419: A Whole-Person Health Approach to MS Care with Dr. Lynne Shinto

Episode 419: A Whole-Person Health Approach to MS Care with Dr. Lynne Shinto

Some people living with MS adhere to a treatment plan based exclusively on what we might consider traditional medicine. Others opt for alternative treatments. And, still, others take a whole-person he...

8 Syys 202533min

Episode 418: The Importance of Developing a Growth Mindset When You're Living With MS with Dr. Mirian Franco

Episode 418: The Importance of Developing a Growth Mindset When You're Living With MS with Dr. Mirian Franco

Living with MS means living with uncertainty, possible physical disability or cognitive dysfunction, bouts of crushing fatigue, mood changes, and let's not forget the very real irritation of well-mean...

1 Syys 202535min

Episode 417: Music and the Body with Emmy Award-Winning Composer Jeff Beal

Episode 417: Music and the Body with Emmy Award-Winning Composer Jeff Beal

If you've watched the critically acclaimed series, House of Cards, on Netflix, or the OCD detective series, Monk, on the USA Network, you've already listened to some of five-time Emmy award-winning co...

25 Elo 202532min

Episode 416: The Updated McDonald Diagnostic Criteria for MS with Dr. Andrew Solomon

Episode 416: The Updated McDonald Diagnostic Criteria for MS with Dr. Andrew Solomon

Since 2001, clinicians have relied on the McDonald Diagnostic Criteria as the gold standard for diagnosing someone with multiple sclerosis. As science continues to add to our understanding of MS, the ...

18 Elo 202527min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
vakeva-elama-viisaampi-mieli-vahvempi-keho
tiedenaiset-podcast
rss-pitaisko-erota
puhu-muru
rss-narsisti
terapiassa
rss-kuumilla-aalloilla
rss-uplevel-by-sonja-hannus
junnut-pelissa
rss-rakas-mielenterveyteni
katilon-kahvitunti
meditaatiot-suomeksi
selviytyjat-tarinoita-elamasta
rss-duodecim-lehti
rss-ehjaksi
rss-vapaudu-voimaasi
rss-kyykkya-ja-kuoharia