24: Patient Advocacy & Insurance

24: Patient Advocacy & Insurance

We're back this week with the final segment of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, especially "complex" ones like those of us with EDS, neurodivergence, and other co-morbidities.


Full show notes are available here.

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Jaksot(44)

44: It's All Connected

44: It's All Connected

We're baaaaaaack.Buckle up, buttercups, this season opener is almost two hours long! References:EDS Society 2026 Global Learning Conference Information: https://www.ehlers-danlos.com/2026-global-learn...

19 Heinä 1h 51min

43: A Conversation With Dr. Akilah Cadet

43: A Conversation With Dr. Akilah Cadet

Dr. Akilah Cadet is the founder and CEO of Change Cadet, an organizational development consulting firm. As a Forbes Next 1000 entrepreneur, her work is behind some of the biggest brands that you use e...

1 Elo 202559min

42: July is Disability Pride Month

42: July is Disability Pride Month

SummaryIt's our Third Birthday! Yay! Celebrate by taking a quick look back at some unseen footage from July 2022.Later in the episode, Luna and Shelli continue their conversation with Dr. Tina Wang. K...

26 Heinä 202539min

41: A Conversation With Fascia Researcher Dr. Tina Wang

41: A Conversation With Fascia Researcher Dr. Tina Wang

SummaryIn this episode, Luna and Shelli interview Dr. Tina Wang, a leading expert in fascia and hypermobility disorders. They discuss the importance of fascia in the body, its role in conditions like ...

19 Heinä 20251h 21min

40: A Conversation With Movement Therapist Jeannie Di Bon

40: A Conversation With Movement Therapist Jeannie Di Bon

Keywordshypermobility, EDS, Integral Movement Method, Zebra Club, chronic pain, movement therapy, nervous system regulation, healthcare education, community support, patient advocacySummaryIn this epi...

5 Heinä 20251h 16min

39: Help I'm Alive: I is for Intersectionality

39: Help I'm Alive: I is for Intersectionality

Shelli explores the personal experiences of multiple surgeries, focusing on the scheduling, preparation, recovery, and interactions with healthcare professionals.Shelli also shares insights into the c...

21 Kesä 202534min

38: Help, I'm alive: H is for Hand Surgery

38: Help, I'm alive: H is for Hand Surgery

In this episode, Tiffany warns about having surgery on both hands on the same day.

7 Kesä 202527min

37: Help, I'm Alive: G is for Good Vibrations

37: Help, I'm Alive: G is for Good Vibrations

Does anyone actually read these descriptions? If you're reading this, not on podcast staff, and have the spoons, leave us a review or comment and tell us about this silly episode description!

24 Touko 202540min

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