31: Help, I'm Alive: Alexa Tamia

31: Help, I'm Alive: Alexa Tamia

Summary

In this season, Shelli shares her experiences following orthopedic surgeries, focusing on recovery, emotional well-being, and the challenges faced by those with neurodivergence. Today's conversation explores the concept of alexithymia and the importance of understanding how one's body and mind work together.

Keywords

Ehlers Danlos, surgery recovery, neurodivergence, interoception, emotional well-being, chronic illness, physical therapy, pain management, accessibility, alexithymia

Reference

Hogeveen, Jeremy, and Jordan Grafman. “Alexithymia.” Handbook of clinical neurology vol. 183 (2021): 47-62. doi:10.1016/B978-0-12-822290-4.00004-9


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Jaksot(46)

46: GLC 2026 After Thoughts

46: GLC 2026 After Thoughts

Luna and Shelli review the good, bad, and the hilarious from their time at the EDS Society's 2026 Global Learning Conference.Did you know we have merch? Visit out store!

16 Elo 1h 18min

45: Binocular Vision Dysfunction

45: Binocular Vision Dysfunction

All about Shell's recent BVD diagnosis and prism glassesResources:NeurolensMany thanks to:Carolyn Stanley - Shelli's youngest kiddo and bendy art studentJoe O'Connor - Newton TechNavindi Weerasinghe -...

2 Elo 38min

44: It's All Connected

44: It's All Connected

We're baaaaaaack.Buckle up, buttercups, this season opener is almost two hours long! References:EDS Society 2026 Global Learning Conference Information: https://www.ehlers-danlos.com/2026-global-learn...

19 Heinä 1h 51min

43: A Conversation With Dr. Akilah Cadet

43: A Conversation With Dr. Akilah Cadet

Dr. Akilah Cadet is the founder and CEO of Change Cadet, an organizational development consulting firm. As a Forbes Next 1000 entrepreneur, her work is behind some of the biggest brands that you use e...

1 Elo 202559min

42: July is Disability Pride Month

42: July is Disability Pride Month

SummaryIt's our Third Birthday! Yay! Celebrate by taking a quick look back at some unseen footage from July 2022.Later in the episode, Luna and Shelli continue their conversation with Dr. Tina Wang. K...

26 Heinä 202539min

41: A Conversation With Fascia Researcher Dr. Tina Wang

41: A Conversation With Fascia Researcher Dr. Tina Wang

SummaryIn this episode, Luna and Shelli interview Dr. Tina Wang, a leading expert in fascia and hypermobility disorders. They discuss the importance of fascia in the body, its role in conditions like ...

19 Heinä 20251h 21min

40: A Conversation With Movement Therapist Jeannie Di Bon

40: A Conversation With Movement Therapist Jeannie Di Bon

Keywordshypermobility, EDS, Integral Movement Method, Zebra Club, chronic pain, movement therapy, nervous system regulation, healthcare education, community support, patient advocacySummaryIn this epi...

5 Heinä 20251h 16min

39: Help I'm Alive: I is for Intersectionality

39: Help I'm Alive: I is for Intersectionality

Shelli explores the personal experiences of multiple surgeries, focusing on the scheduling, preparation, recovery, and interactions with healthcare professionals.Shelli also shares insights into the c...

21 Kesä 202534min

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