TSC Talks! "There is No Other Choice" Nicky's Gardens of Hope or Bust, with TSC Mom, Founder & CEO Adriana Piltz
TSC Talks!24 Heinä 2019

TSC Talks! "There is No Other Choice" Nicky's Gardens of Hope or Bust, with TSC Mom, Founder & CEO Adriana Piltz

Adriana Piltz, is Founder & CEO of Nicky's Gardens of Hope (NGOH). She came on the podcast back in October 2018 to give us an introduction and explanation of this one of a kind project. In this episode she gives us an update, discussing what's happened since we last talked, and why she is even more excited & passionate than ever about this unique opportunity. Speaking from personal experience, having left a wall street career to start this project, Adriana knows that the gaps in the long term systems designed to support our loved ones after we are gone are only widening as individuals with IDD & Autism approach "the cliff" at age 21 and the services that once supported them start to fall away. She's committed to addressing this crisis due to lack of funding and constantly changing government requirements and NGOH is committed to providing long term care that integrates work therapy, training for employment, community engagement, recreation, and more to allowing for a quality of life for not only Nicky, but others like Nicky. Adriana wants to know, like so many of us that care for those affected by IDD & Autism, that after we die, our loved ones who are valuable individuals and deserve access to programs and opportunities that give them a chance to work, have community, and that support their needs over the course of their entire lifetime. She details why NGOH is unique, with a two corporation model combining a charity created to build safe, permanent homes for IDD & Autism affected adults & provide support services for their families with a Type B corp creating enduring business enterprises that provide funds to support the charity. Adriana and her team are well on their way to making this project a reality and have events already on the calendar in August with an IDD/Autism get together in NYC on 8/17 and an IDD/Autism parent/caregiver/family support group phone call on 8/20 to give opportunities to connect, share our stories, struggles and feel less alone. Adriana is a true visionary and has assembled a team of like-minded individuals, with financial & investment expertise, healthcare information management experience, nutrition and therapy expertise, and more to ensure the success of this revolutionary new model. Contact the team at NGOH for more information and/or to get involved! info@ngohllc.com or visit https://nickysgardensofhope.com.

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TSC Talks 3.0 (not) Research ~ In the Stone Chamber

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TSC Talks 3.0 Research~Episode 10

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TSC Talks 3.0 Research~Episode 9

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TSC Talks 3.0 Research~Episode 6

TSC Talks 3.0 Research~Episode 6

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TSC Talks 3.0 Research~Episode 5

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In this episode I share information on the risks and side effects of CRISPR for individuals with TSC and in general as well as go into how those affected with TSC are "test bunnies" for much of this n...

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TSC Talks 3.0 Research~Episode 4

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