SMA Type 1 Infants Treated With Zolgensma Achieving Milestones, Data Show
SMA News Today’s multimedia associate, Price Wooldridge, discusses SMA Type 1 infants, treated with Zolgensma, are achieving milestones. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
16 Loka 20207min
Spontaneous Trips, Reading, Socially Distant Celebrations, Delayed Deliveries & More
Forums Director Kevin Schaefer talks about a spontaneous trip he took on his 26th birthday last year, and the adventures that came from it. A variety of topics are being discussed in the forums. Among them include enjoying reading, socially distant celebrations, maskne and delayed deliveries. To learn more about spinal muscular atrophy, visit our website at http://www.smanewstoday.com.
14 Loka 20207min
Infants Receiving Evrysdi Continue to Improve and Achieve Motor Milestones
SMA News Today’s multimedia associate, Price Wooldridge, discusses infants who are receiving Evrysdi continue to improve and achieve motor milestones in phase 2 and 3 trial data. In light of National Disability Employment Awareness Month (NDEAM) DeAnn Runge shares her first job experiences and why it’s important to talk about this topic. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
12 Loka 20209min
Novartis to Open, at FDA Request, New Trial of Zolgensma for Older Patients
SMA News Today’s multimedia associate, Price Wooldridge, discusses Novartis opening, at FDA request, a new trial of Zolgensma for older patients. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
9 Loka 20207min
How SMA Affects Your Ability to Draw, Treasuring Little Things & Setting Boundaries With Caregivers
Forums Director Kevin Schaefer talks about how SMA has affected his ability to draw, and about treasuring the little things. Recent topics being discussed in the SMA News Today forums include setting boundaries with caregivers, vlogs from DeAnn Runge & Michael Morale as well as reflecting on the changing season. To learn more about spinal muscular atrophy, visit our website at http://www.smanewstoday.com.
7 Loka 20205min
#67 - Interview With Maylan Chavez
In episode 67, host Kevin Schaefer talks with Maylan Chavez from Miami, Florida. Maylan is an ambassador for the company EyeGaze Inc., which develops eye tracking technology for people with disabilities. During this interview, Maylan shares her experiences as an adult with SMA Type 2, and offers some advice for others in the community. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com
6 Loka 202037min
Spinraza Leads To Motor Gains Over Time in SMA Type 3 Adults
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza leads to motor gains over time in Spinal Muscular Atrophy (SMA) Type 3 adults, according to a real-life study. DeAnn Runge talks about meeting her new service dog and what training is like. She also discusses the different types of dog placements that were in her class. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
5 Loka 20209min
GridPad Trilogy Communication Device Aids People With Speech And Motor Disorders Who Have SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses the GridPad Trilogy communication device, which aids people with speech and motor disorders who have Spinal Muscular Atrophy (SMA). Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
2 Loka 20204min
