#109: 2022 Cure SMA Conference Recap
In episode 109, host Kevin Schaefer chats to several attendees from this year’s Cure SMA conference in Anaheim, California. Ashley Fox, Ryan Manriquez, and Kyle Harris discuss reuniting after such a l...
5 Heinä 202239min
#108: A Mother Discusses the Approval of Evrysdi for Infants With SMA
In episode 108, host Kevin Schaefer talks with Logan Nantz from southern Indiana. Logan’s daughter Hayden is two years old and has SMA. They discuss Logan family’s story, as well as the news that Gene...
21 Kesä 202224min
#107: A Conversation About Mental Health With LGBTQ+ and Disability Advocates
In episode 107, host Kevin Schaefer talks about mental health with LGBTQ+ and disability advocates. Panelists include Ali Ramos (she/her), licensed social worker; Sherry Toh (she/they), columnist for ...
7 Kesä 202247min
#106: A Conversation About Women’s Mental Health With Rare Disease and Disability Advocates
In episode 106, host Kevin Schaefer talks with a group of rare disease and disability advocates about women’s mental health. Panelists include Charlene Marshall, licensed mental health professional, a...
17 Touko 202233min
#105: A Conversation About Men’s Mental Health With Rare Disease and Disability Advocates
In episode 105, host Kevin Schaefer talks with rare disease and disability advocates about men’s mental health. Panelists include Paris Dancy, licensed mental health professional, and columnist for Cu...
3 Touko 202255min
#104: Interview With Ben Lou, Mathematics Student With SMA
In episode 104, host Kevin Schaefer talks with Ben Lou from San Diego, California. Ben is a student at MIT, planning to double major in math and physics. He discusses his lifelong love for learning, g...
19 Huhti 202233min
#103: Clinical Trials and Advocacy with Stephen Mikita and Arya Singh
In episode 103, host Kevin Schaefer talks with Stephen Mikita and Arya Singh, two individuals with SMA who have years of experience with clinical trials. Stephen, 66, was an Assistant Attorney General...
5 Huhti 202242min
#102: Interview with Amber-Joi Watkins, SMA Mom and Advocate
In this episode, host Kevin Schaefer talks to Amber-Joi Watkins, an SMA mom and advocate. Amber-Joi talks about raising her daughter, Celine, and becoming part of the SMA community. She also discusses...
15 Maalis 202231min
