Health Canada Approves Evrysdi for At-home Treatment

Health Canada Approves Evrysdi for At-home Treatment

SMA News Today’s multimedia associate, Price Wooldridge, discusses Health Canada’s approval of Evrysdi for at-home treatment in SMA patients. Also, Forums Director Kevin Schaefer reads a column by Ari Anderson about his friendship with a North Carolina senator. Link to Ari’s column: https://smanewstoday.com/columns/2021/04/22/importance-people-recognize-my-worth-senator-thom-tillis/ Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

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#118: Aging and SMA

#118: Aging and SMA

In episode 118, host Kevin Schaefer talks with work colleagues Michael Morale and DeAnn Runge about aging and SMA. They start by discussing Scholar Rock’s experimental therapy, Apitegromab, and go ove...

22 Marras 202252min

#116: Shaniqua Granby, Law Professional With SMA

#116: Shaniqua Granby, Law Professional With SMA

In episode 116, host Kevin Schaefer talks with Shaniqua Granby from Virginia Beach, Virginia. Shaniqua is an equal employment opportunity specialist, and she has SMA Type 3. She discusses going to law...

18 Loka 202237min

#115: Jose Flores, Author and Motivational Speaker

#115: Jose Flores, Author and Motivational Speaker

In episode 115, host Kevin Schaefer talks with Jose Flores from Miami, Florida. Jose is a bestselling author and motivational speaker who lives with SMA Type 3. He discusses his journey toward entrepr...

4 Loka 202250min

#114: Daniele Johnson, SMA Mom and Advocate

#114: Daniele Johnson, SMA Mom and Advocate

In episode 114, host Kevin Schaefer talks with Daniele Johnson from Evansville, Indiana. Daniele and her husband’s youngest son, Anthony, has SMA type 0. She talks about her son’s diagnosis, pursuing ...

20 Syys 202230min

#113: Dustin Swafford, Power Soccer Coach and Player

#113: Dustin Swafford, Power Soccer Coach and Player

In episode 113, host Kevin Schaefer talks with Dustin Swafford from Georgia. Dustin has been playing and coaching a power soccer team for years, and his team recently won the national championship. He...

6 Syys 202235min

#112: Lexi Villa, Social Media Influencer and Disability Advocate

#112: Lexi Villa, Social Media Influencer and Disability Advocate

In episode 112, host Kevin Schaefer talks with Lexi Villa from Torrance, California. Lexi works in retail and shares her life with SMA on social media. She discusses moving away from home at a young a...

16 Elo 202256min

#111: Steven Verdile, Graphic Designer and Disabled Creative

#111: Steven Verdile, Graphic Designer and Disabled Creative

In episode 111, host Kevin Schaefer talks with Steven Verdile, a graphic designer and media creator from New York City. Steven is also the founder and editor-in-chief of The Squeaky Wheel, an online d...

2 Elo 202228min

#110: Author Ben Mattlin Discusses Disability Pride Month

#110: Author Ben Mattlin Discusses Disability Pride Month

In episode 110, host Kevin Schaefer welcomes back to the podcast Ben Mattlin, an author and disability rights advocate. His upcoming book is called “Disability Pride: Dispatches from a Post-ADA World,...

19 Heinä 202231min

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