Trial of Spinraza at High Dose for Patients Who Have Used Evrysdi & Dealing With Your Period

SMA News Today Community Editor Kevin Schaefer interviews Owen Kent, a filmmaker who has SMA. Kevin and Owen met at the 2018 CureSMA Conference in Dallas about his SMA diagnosis and experience with the disease, as well as his next, upcoming film project.

2 Heinä 201836min

#10 - Friederike And Anna Wittchen From #CureSMA 2018 by SMA News Today

21 Kesä 201838min

SMA News Today Community Editor Kevin Schaefer interviews Israel and Rio Landa, both medical professionals whose son Mateo has type 2 SMA. Israel and Rio talk about their diagnosis experience, feedback about Spinraza, what their daily life as caregivers is like, and how Mateo is doing.

4 Kesä 201822min

In SMA News Today's 8th podcast, Community Editor Kevin Schaefer interviews Wheelchair Rapunzel Founder Alex Dacy. Visit the site here: https://www.wheelchairrapunzel.com

26 Huhti 201830min

SMA News & Perspectives - April 24, 2018 by SMA News Today

24 Huhti 20184min

SMA News Today Community Editor Kevin Schaefer interviews Brian Bucher -- a parent of a child with SMA and founder of Aydn's Dream. Brian talks about his family's experience with the disease, his efforts to support the community through promoting live music performances, and his fervent belief that accessibility is a Civil Right. Learn more about Adyn's Dream here: http://www.adynsdream.org and on Facebook: https://www.facebook.com/AdynsDream/

29 Maalis 201837min

SMA News & Perspectives - March 28, 2018 by SMA News Today

29 Maalis 20183min

SMA News & Perspectives - March 7, 2018 by SMA News Today

7 Maalis 20184min