Evrysdi May Be Available in Early 2022 to Eligible UK Patients &Modifying a Wheelchair for SMA Needs

Evrysdi May Be Available in Early 2022 to Eligible UK Patients &Modifying a Wheelchair for SMA Needs

SMA News Today’s multimedia associate, Price Wooldridge, discusses how The National Institute for Health and Care Excellence has recommended that Evrysdi be provided at low or no cost to eligible SMA patients in England. Also, the process of modifying a wheelchair for specific needs is no easy task. DeAnn Runge shares how difficult it’s been for her simply to receive comfortable arm rest pads. Even after replacing them, they’re not what she hoped for. She’s now contemplating what her next action should be. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

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#19 - Interview With Michael Morale

#19 - Interview With Michael Morale

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale interview one another in a new format that will feature more roundtable-style discussions about SMA. This podcast takes listeners through Kevin and Michael's unique life journeys with SMA and beyond, highlighting how living with the disease has not kept them from meeting their own life goals and dreams.

7 Marras 20181h 6min

#17 - Interview With Shane Burcaw

#17 - Interview With Shane Burcaw

In SMA News Today's 17th podcast, Community Editor Kevin Schaefer interviews Shane Burcaw, author and Founder and President of the nonprofit "Laughing At My Nightmare."

23 Loka 201836min

#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

In this special edition of the SMA News today podcast, Forums Editor Michael Morale discusses AveXis' recent announcement that experimental SMA gene therapy AVXS-101 has been submitted to the US Food and Drug Administration (FDA) for approval.

22 Loka 20185min

#16 - Interview With Brian Ronningen

#16 - Interview With Brian Ronningen

In SMA News Today's 16th edition of Community Editor Kevin Schaefer's podcast, Kevin interviews Brian Ronningen -- a 48 year-old Human Resources professional who has SMA type 2 -- about his experience growing up with the disease in the 70s and 80s, as well as his perspectives on employment for those with disabilities.

11 Loka 201829min

#15 - Byron And Moriah Potter

#15 - Byron And Moriah Potter

In the 15th episode of the SMA News Today podcast, Community Editor Kevin Schaefer interviews Byron and Moriah Potter -- parents of two children who have SMA.

17 Syys 201839min

#14 - Interview With Amber Bosselman

#14 - Interview With Amber Bosselman

In SMA News Today's 14th podcast, Community Editor Kevin Schaefer interviews college student Amber Bosselman, who talks about her diagnosis as a child, life growing up with the disease, and her present and future goals.

22 Elo 201836min

#13 - Interview With Ann Heathcote

#13 - Interview With Ann Heathcote

SMA News Today Community Editor Kevin Schaefer interviews Ann Heathcote -- a college student with SMA type 2.

31 Heinä 201834min

#12 - Interview With Kristin Walters

#12 - Interview With Kristin Walters

24 year-old Kristin Walters talks to SMA News Today Community Editor Kevin Schaefer about overcoming depression, travel to Europe with SMA, and her experiences with Spinraza.

5 Heinä 201846min

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