Exploring The Intersection of Identity and SMA
Forums Director Kevin Schaefer explores the intersection of identity and SMA in his latest column. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.
2 Joulu 20204min
#71: Interview with Kristen Resendez, SMA Parent and Advocate
In episode 71, host Kevin Schaefer talks with Kristen Resendez from Harlingen, Texas. Kristen’s son, Jack, has SMA, and she is an active member of the SMA community. During this conversation, she talks about life since Jack’s diagnosis, medical advancements, and advice for other parents. ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com
1 Joulu 202040min
Spinraza Shown to Preserve Respiratory Muscle Strength in SMA Type 2 Patients
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study has shown Spinraza preserves respiratory muscle strength in Spinal Muscular Atrophy (SMA) Type 2 patients. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
30 Marras 20205min
Lung Health Declines in Step With Motor Loss in Types 2 and 3, Study Finds
SMA News Today’s multimedia associate, Price Wooldridge, discusses how lung health declines in step with motor loss in Spinal Muscular Atrophy (SMA) Types 2 and 3. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
26 Marras 20205min
Reflecting On The Insanity of 2020 and The People Who Got Us Through This Year
Forums Director Kevin Schaefer reflects on the insanity of 2020, and talks about the people who got him through this year. To learn more about spinal muscular atrophy, visit our website at http://www.smanewstoday.com.
25 Marras 20205min
Spinraza’s Benefits Mild, Transient in Infant With Severe Type 0 SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses the mild, transient benefits of Spinraza treatment in an infant with severe, Type 0, Spinal Muscular Atrophy (SMA). Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
23 Marras 20205min
Molecule Similar to Evrysdi But Possibly Safe at Higher Doses Identified
SMA News Today’s multimedia associate, Price Wooldridge, discusses a molecule similar to Evrysdi, is possibly safer at higher doses has been identified. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
20 Marras 20207min
How An Urology Appointment Turned Into A Fiasco & Typing Strategies, Vitamin D and Friendsgiving
Forums Director Kevin Schaefer talks about how a recent urology appointment turned into a bit of a fiasco. He describes this as an “SMA kind of day.” Also, SMA News Today not only brings you the latest news as it relates to SMA, they also have great content in regards to living with it. DeAnn Runge gives a brief synopsis of Katie Napiwocki’s latest column as well as highlights recent forum topics like easier typing strategies, vitamin D and Friendsgiving. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.
18 Marras 20206min
