#148: Ashley Fox and Madeline Engel discuss friendship and caregiving

#148: Ashley Fox and Madeline Engel discuss friendship and caregiving

In episode 148, host Kevin Schaefer talks with Ashley Fox and Madeline Engel from California. Ashley has SMA, and Madeline became her best friend and caregiver when they were in college. They discuss the nuances of friendship and caregiving, plus touch on confronting internalized ableism and navigating graduate school and careers. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

Jaksot(444)

Zolgensma's Potential To Change The Whole Landscape of SMA & Melissa Milinovich's Story

Zolgensma's Potential To Change The Whole Landscape of SMA & Melissa Milinovich's Story

SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how Zolgensma has the potential to change the whole landscape of SMA. Also, Community Development Manager Kevin Schaefer re...

7 Elo 20199min

#39 - Interview With Jason Bertsch

#39 - Interview With Jason Bertsch

In episode 39 of the SMA News Today Podcast, host Kevin Schaefer interviews Jason Bertsch from Greenfield, Indiana. Jason and his wife Kelly have two sons, and their youngest, Luke, has SMA Type 2. Ja...

6 Elo 201933min

European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence

European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence

We discuss how European SMA advocates question the EU’s willingness to reimburse for Zolgensma. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about claiming your independenc...

5 Elo 20198min

#38 - Roundtable Discussion - Discussion for July 2019

#38 - Roundtable Discussion - Discussion for July 2019

In the latest episode of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale discuss updates regarding SMA therapies Spinraza and Reldesemtiv. Also, Kevin and columnist Brianna Albers ...

16 Heinä 201940min

#37 - Interview With Courtney Smith And Trevor Rogerson

#37 - Interview With Courtney Smith And Trevor Rogerson

In episode 37 of the SMA News Today Podcast, host Kevin Schaefer interviews Courtney Smith and her boyfriend Trevor Rogerson. They live in Seattle, Washington, and Courtney has SMA Type 2. Are you in...

2 Heinä 201920min

#35 - Interview With Mike Blakey

#35 - Interview With Mike Blakey

In episode 35 of the SMA News Today Podcast, host Kevin Schaefer interviews Mike Blakey from Gainesville, Florida. Mike is a part-time CPA and attorney, and he has SMA Type 3." Photo Contributed by M...

4 Kesä 201936min

#34 - Roundtable Discussion - Discussion for May 2019

#34 - Roundtable Discussion - Discussion for May 2019

In episode 34 of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale talk about the latest SMA news and perspectives from May 2019. Topics include clinical trial updates from the 2019 ...

21 Touko 201928min

Upper Survival Rate For Adults And Children With Neuromuscular Disorders & Being Kind

Upper Survival Rate For Adults And Children With Neuromuscular Disorders & Being Kind

We discuss how the survival rate is up for adults and children with neuromuscular disorders. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how showing respect and ...

17 Touko 20198min

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