S2, Ep. 8: The Role of Parents in Tube Weaning

When we talk about tube weaning, we’re not just talking about transitioning from tube feeds to oral intake—we’re talking about creating or restoring joy, curiosity, and connection to eating and feeding. And at the heart of that process is YOU, the parent. Too often, parents find themselves in one of two difficult roles: either sidelined and treated as an afterthought or isolated, left alone to search for answers and support. We know and believe that parents are the experts on their children. Your insight, intuition, and involvement are not just helpful—they are essential.

The feeding environment matters deeply. What makes your child feel comfortable, safe and secure? Maybe it’s sitting on a parent's lap during breakfast or being surrounded by siblings at the table. We must expand our definition of safety beyond a physical aspect, also considering emotional and sensory safety. Within the feeding environment, we need to also consider structure, not rigidity.

And when we do offer food, let’s consider pleasure, too. The goal at first is positive, low-pressure, intrinsically motivated experiences. That could be a lick of a chip, a finger dipped in ketchup, or stealing a bite from mom’s plate. If they see you enjoying it, they might be more willing to try it. That joy is the bridge to variety and nutrition later on. Every child is different. Every family is different. This journey will evolve, and that’s okay. It’s not about getting it perfect—it’s about staying curious, responsive, and connected to your child. Tube weaning is a process of learning, for everyone involved. It takes time, flexibility, and trust. And when parents are centered and supported, children can THRIVE.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

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