Episode 409: From the International Progressive MS Alliance Digital Tools Workshop
RealTalk MS30 Kesä 2025

Episode 409: From the International Progressive MS Alliance Digital Tools Workshop

Last week, I was in Philadelphia, attending the Digital Tools Workshop hosted by the International Progressive MS Alliance. Welcome to Part One of our coverage!

As we look around us, it's hard to imagine a single aspect of our lives that hasn't been impacted by the constant and rapid evolution of technology. Just consider the capabilities of the device you're using to listen to this podcast. This workshop highlighted the ways that emerging digital tools will accelerate MS clinical trials and enhance personalized MS care.

In this week's episode, you'll hear Dr. Robert Fox, the Chair of the International Progressive MS Alliance Scientific Steering Committee, and Dr. Tim Coetzee, President and CEO of the National MS Society, discuss some of the ways digital tools can impact MS research and care, as well as some of the issues that need to be addressed to ensure that everyone living with MS can benefit from these tools.

Then, you'll hear the workshop co-chair, Dr. Jennifer Graves, discuss her team's work in developing a digital tool that can accurately determine whether an individual has relapsing-remitting MS or progressive MS -- after a 5-minute test that consists of tapping their fingers and feet!

You'll hear Dr. Anne Helme, the Head of Research and Access at the MS International Federation, explain how digital tools can boost patient-reported outcomes in MS research.

And you'll hear Dr. Stefan Gold share the positive results of his study involving an at-home digital intervention designed to treat depression among people with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: From the International Progressive MS Alliance Digital Tools Workshop :22

Dr. Tim Coetzee and Dr. Robert Fox discuss how digital tools will impact MS research and care :54

Dr. Jennifer Graves talks about her team's work in developing a digital tool, and how MS research is being threatened by drastic cuts in federal research funding 9:56

Dr. Anne Helme discusses how digital tools will boost patient-reported outcomes in MS research 16:26

Dr. Stefan Gold shares the positive results of his study involving an at-home digital intervention designed to treat depression among people with MS. 24:06

Share this episode 37:38

Have you downloaded the free RealTalk MS app? 37:58

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/409

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 409
Guests: Dr. Tim Coetzee, Dr. Robert Fox, Dr. Jennifer Graves, Dr. Anne Helme, Dr. Stefan Gold

Privacy Policy

Jaksot(505)

Episode 423: Understanding Infections and MS with Dr. Robert Fox

Episode 423: Understanding Infections and MS with Dr. Robert Fox

From the earliest days of the COVID-19 pandemic, people living with MS have been justifiably concerned about how a COVID-19 infection might impact their MS. As the new "Stratus" strain of COVID-19 is ...

6 Loka 202533min

Episode 422: From ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

Episode 422: From ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

Last week, over 9600 MS researchers and clinicians gathered in Barcelona for the European Committee for Treatment and Research in Multiple Sclerosis annual scientific congress -- ECTRIMS 2025. Minut...

29 Syys 202523min

Episode 421: Optimizing Your Brain Health with Nurse Practitioner Erin Wilkinson

Episode 421: Optimizing Your Brain Health with Nurse Practitioner Erin Wilkinson

Happy birthday to us! RealTalk MS is 8 years old today! It's hard for me to believe that the podcast I launched in 2017, with the goal of one day reaching 300 listeners, today reaches thousands of peo...

22 Syys 202542min

Special Episode: Dr. Aaron Boster Explains MS Clinical Trials

Special Episode: Dr. Aaron Boster Explains MS Clinical Trials

You're living with MS, and maybe you're thinking about participating in an MS clinical trial. But how do they work? Are they safe? What's the difference between Phase 1, 2, and 3 trials? What are the ...

17 Syys 202533min

Episode 420: A DIY Kit for Improving Your MS Journey with Julie Polisena

Episode 420: A DIY Kit for Improving Your MS Journey with Julie Polisena

Disease-modifying therapies are the cornerstone of MS treatment, but they're not the only piece of the puzzle. Beyond prescription medications, self-care that includes making healthy lifestyle choices...

15 Syys 202534min

Episode 419: A Whole-Person Health Approach to MS Care with Dr. Lynne Shinto

Episode 419: A Whole-Person Health Approach to MS Care with Dr. Lynne Shinto

Some people living with MS adhere to a treatment plan based exclusively on what we might consider traditional medicine. Others opt for alternative treatments. And, still, others take a whole-person he...

8 Syys 202533min

Episode 418: The Importance of Developing a Growth Mindset When You're Living With MS with Dr. Mirian Franco

Episode 418: The Importance of Developing a Growth Mindset When You're Living With MS with Dr. Mirian Franco

Living with MS means living with uncertainty, possible physical disability or cognitive dysfunction, bouts of crushing fatigue, mood changes, and let's not forget the very real irritation of well-mean...

1 Syys 202535min

Episode 417: Music and the Body with Emmy Award-Winning Composer Jeff Beal

Episode 417: Music and the Body with Emmy Award-Winning Composer Jeff Beal

If you've watched the critically acclaimed series, House of Cards, on Netflix, or the OCD detective series, Monk, on the USA Network, you've already listened to some of five-time Emmy award-winning co...

25 Elo 202532min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
tiedenaiset-podcast
vakeva-elama-viisaampi-mieli-vahvempi-keho
puhu-muru
katilon-kahvitunti
rss-pitaisko-erota
meditaatiot-suomeksi
rss-pt-paahtio
audio-sport-juoksu
rss-kuumilla-aalloilla
terapiassa
selviytyjat-tarinoita-elamasta
junnut-pelissa
rss-mighty-finland-podcast
paritellen
rss-nautinto
rss-narsisti
rss-kyykkya-ja-kuoharia