#150: Jenna and Tanya Vega share their love story

#150: Jenna and Tanya Vega share their love story

In episode 150, host Kevin Schaefer talks with Jenna and Tanya Vega from Palm Springs, California. Jenna and Tanya discuss their seven years together, navigating daily life with SMA, and their wedding last year. They also share tips and advice for other couples in the SMA community.

Jaksot(440)

#11 - Interview With Filmmaker Owen Kent

#11 - Interview With Filmmaker Owen Kent

SMA News Today Community Editor Kevin Schaefer interviews Owen Kent, a filmmaker who has SMA. Kevin and Owen met at the 2018 CureSMA Conference in Dallas about his SMA diagnosis and experience with the disease, as well as his next, upcoming film project.

2 Heinä 201836min

#10 - Friederike And Anna Wittchen From #CureSMA 2018

#10 - Friederike And Anna Wittchen From #CureSMA 2018

#10 - Friederike And Anna Wittchen From #CureSMA 2018 by SMA News Today

21 Kesä 201838min

#9 - Interview With Israel & Rio Landa

#9 - Interview With Israel & Rio Landa

SMA News Today Community Editor Kevin Schaefer interviews Israel and Rio Landa, both medical professionals whose son Mateo has type 2 SMA. Israel and Rio talk about their diagnosis experience, feedback about Spinraza, what their daily life as caregivers is like, and how Mateo is doing.

4 Kesä 201822min

#8 - Interview With Wheelchair Rapunzel Founder Alex Dacy

#8 - Interview With Wheelchair Rapunzel Founder Alex Dacy

In SMA News Today's 8th podcast, Community Editor Kevin Schaefer interviews Wheelchair Rapunzel Founder Alex Dacy. Visit the site here: https://www.wheelchairrapunzel.com

26 Huhti 201830min

SMA News & Perspectives - April 24, 2018

SMA News & Perspectives - April 24, 2018

SMA News & Perspectives - April 24, 2018 by SMA News Today

24 Huhti 20184min

#7 - Interview With SMA Parent & Adyn's Dream Founder Brian Bucher

#7 - Interview With SMA Parent & Adyn's Dream Founder Brian Bucher

SMA News Today Community Editor Kevin Schaefer interviews Brian Bucher -- a parent of a child with SMA and founder of Aydn's Dream. Brian talks about his family's experience with the disease, his efforts to support the community through promoting live music performances, and his fervent belief that accessibility is a Civil Right. Learn more about Adyn's Dream here: http://www.adynsdream.org and on Facebook: https://www.facebook.com/AdynsDream/

29 Maalis 201837min

SMA News & Perspectives - March 28, 2018

SMA News & Perspectives - March 28, 2018

SMA News & Perspectives - March 28, 2018 by SMA News Today

29 Maalis 20183min

SMA News & Perspectives - March 7, 2018

SMA News & Perspectives - March 7, 2018

SMA News & Perspectives - March 7, 2018 by SMA News Today

7 Maalis 20184min

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