About IBD5 Elo 2025

How Propel a Cure is Transforming Crohn's Disease Research

Episode transcript and more information at: https://bit.ly/AIBD180 Grassroots organizations are an important part of the IBD landscape, helping fill in the many gaps in our underserved community. Amber talks with Angela Clark, president and CEO of Propel a Cure, a grassroots nonprofit that funds research projects looking for the causes of Crohn's disease. They discuss the challenges of finding cures for IBD and the importance of supporting innovative, early-stage research. Angela explains their grant selection process, highlights current research they fund, and shares how the organization communicates complex science to the IBD community. Topics in this episode include:

Origins and mission of Propel a Cure, a nonprofit organization focused on Crohn's disease research.
Angela Clark's personal connection to Crohn's disease and her role in Propel a Cure.
The grassroots nature of Propel a Cure and its all-volunteer structure.
Challenges and rewards of running a nonprofit organization dedicated to IBD research.
Funding strategies for innovative research projects related to Crohn's disease.
Importance of raising awareness and combating misconceptions about Crohn's disease.
Overview of current research projects funded by Propel a Cure and their scientific approaches.
The role of a scientific advisory board in evaluating research proposals.
Communication strategies for making complex scientific research accessible to the IBD community.
Future goals for expanding funding capacity and building partnerships within the IBD space.

More information:

Propel a Cure Videos (interviews with leading IBD researchers)
Propel a Cure Newsletter
Donate to Propel a Cure

Find Propel a Cure at:

Web: PropelACure.org
Twitter: @propelacure
Instagram: @propelacure
Facebook: @propelacure
LinkedIn: @propel-a-cure-for-crohn-s-disease
YouTube: @propelacure

Find Amber J Tresca at:

AboutIBD.com: About IBD
Verywell: Verywell Health
Facebook: @aboutIBD
Twitter: @aboutIBD
Pinterest: @aboutibd
Instagram: @about_IBD
YouTube: @AboutIBD
Threads: @about_IBD

Find Mac Cooney (mix, sound design, and theme music) at:

Facebook: @maccooneycomposer
Instagram: @maccooneycomposer
Web: Cooney Studio
YouTube: @MacCooneyComposer
Theme music, IBD Dance Party, is from ©Cooney Studio

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(200)

Declutter Your Life While Living with Chronic Illness

Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to ma...

11 Maalis 20251h 4min

Behind the Scenes of About IBD

Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: ...

25 Helmi 202514min

Why Representation Matters for the LGBTQ+ Community

There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the ...

11 Helmi 202551min

How to Thrive as a Parent with IBD Featuring Jaime Holland

Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision...

28 Tammi 202540min

Navigating Hernia Surgery Featuring Mike Tresca

Amber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the sur...

7 Tammi 20251h 22min

Amber's 2024 in Books

Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed ...

22 Joulu 202424min

"Fine" Dining With Crohn's Disease Featuring Michael Ornelas

What's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continu...

10 Joulu 20241h 2min

"3 Kidneys, No Colon" With Dave Piontkowski

For people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative c...

26 Marras 202440min