Brian: Living with Ehlers-Danlos Syndrome

Brian: Living with Ehlers-Danlos Syndrome

In todays episode we are joined by Brian Reeve-Hayes a secondary school teacher who shares his experience of living, working and parenting with Ehlers Danlos Syndrome.


We chat about the pathway to diagnosis, private vs NHS care, and balancing work and parenting with healthcare.


You can up to our newsletter for podcast summaries and more content on living with chronic illness here: http://alivewithchronicillness.substack.com/.


Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.

Intro and outro audio by podcast.co.

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Jaksot(34)

Flare-up Planning | The Chronic Illness Management Programme: Section 8

Flare-up Planning | The Chronic Illness Management Programme: Section 8

In Section 8 of our Chronic Illness Management programme we explore proactive steps you can take to prepare for flare-ups. Helping you feel more in control of your life while living with an unpredicta...

5 Syys 28min

Re-engaging | The Chronic Illness Management Programme: Section 7

Re-engaging | The Chronic Illness Management Programme: Section 7

In Section 7 of our Chronic Illness Management programme we explore ways to sustainably re-engage with work, hobbies and daily life after a health change. We talk about how sustainable re-engagement t...

22 Elo 19min

Adapting | The Chronic Illness Management Programme: Section 6

Adapting | The Chronic Illness Management Programme: Section 6

In Section 6 of our Chronic Illness Management programme we explore ways you can adapt your life to make it more accessible, and tasks more sustainable when you live with chronic illness.🏘️ You can j...

8 Elo 48min

Pacing in Practice (Part 2) | The Chronic Illness Management Programme: Section 5

Pacing in Practice (Part 2) | The Chronic Illness Management Programme: Section 5

In Section 5 of our Chronic Illness Management programme we continue to use fictional real life inspired scenarios written by Jo's occupational therapy students to explore different ways people can im...

25 Heinä 19min

Pacing in Practice (Part 1) | The Chronic Illness Management Programme: Section 4

Pacing in Practice (Part 1) | The Chronic Illness Management Programme: Section 4

In Section 4 of our Chronic Illness Management programme we use fictional real life inspired scenarios written by Jo's occupational therapy students to explore different ways people can implement paci...

11 Heinä 27min

Implementing Pacing for Chronic Illness | The Chronic Illness Management Programme: Section 3

Implementing Pacing for Chronic Illness | The Chronic Illness Management Programme: Section 3

In Section 3 of our Chronic Illness Management programme we explore the ways you can implement pacing into your daily life. Considering the different types of energy, and practical steps you can take ...

27 Kesä 19min

Pacing Theory for Chronic Illness | The Chronic Illness Management Programme: Section 2

Pacing Theory for Chronic Illness | The Chronic Illness Management Programme: Section 2

In Section 2 of our Chronic Illness Management programme we explore the pacing theory and how it can support chronically ill and disabled people to better manage their energy, making sure you have the...

13 Kesä 18min

Getting Started with Chronic Illness Management | The Chronic Illness Management Programme: Section 1

Getting Started with Chronic Illness Management | The Chronic Illness Management Programme: Section 1

In Section 1 of our Chronic Illness Management programme we explore the first steps you could take in managing your chronic illness. Whether you have a new diagnosis, a change in symptoms or just want...

30 Touko 27min

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