The Paper Bag Plan: Caregiving, Independence, and Planning Ahead
Share Your Feedback or Recommend New Topics In this episode, ASF CEO Amanda Moore is joined by Christian Pache, an Angelman dad and ASF board member; Anthony Lucero, the filmmaker behind The Paper Bag...
27 Tammi 42min
Protecting Your Mental Health During the Holidays
Share Your Feedback or Recommend New Topics The holidays can be joyful – and overwhelming – especially for families caring for someone with Angelman syndrome. In this episode, ASF Family Resource Dire...
18 Joulu 202530min
Advocacy Abby: Opening Doors to Resources and Relief
Share Your Feedback or Recommend New Topics In this episode, Amanda sits down with Abby Zachritz, better known as Advocacy Abby, the Director of Family Advocacy at Support Now and creator of the Conne...
10 Marras 202545min
Advocating for Access: How Policy Shapes the Future of Gene Therapy
Share Your Feedback or Recommend New Topics ASF CEO Amanda Moore talks with former Congressman Erik Paulsen, Chairman of the Institute for Gene Therapies, about how policy and advocacy are shaping the...
30 Loka 202524min
Rest Assured: Safe Sleep for Angelman Families
Share Your Feedback or Recommend New Topics Tired nights, travel challenges, and endless insurance hurdles... sound familiar? In this episode, guest host Liz Thompson, Development Director at ASF, tal...
10 Loka 202533min
Planning for the Future: ASF Housing Champions Share Their Journeys
Share Your Feedback or Recommend New Topics In this episode, guest host Kathryn Ely, ASF's Family Resource Director, leads a candid discussion with ASF’s Adult Housing Champions, a group of parents an...
8 Syys 20251h 6min
Talking Toileting with Dr. Colin Muething
Share Your Feedback or Recommend New Topics Toileting is one of the most common (and often most challenging) milestones for individuals with Angelman syndrome. In this episode, Dr. Colin Muething, Dir...
13 Elo 202557min
