#4 - Interview With Dr. Danielle Sheypuk

#4 - Interview With Dr. Danielle Sheypuk

SMA News Today Community Editor interviews Dr. Danielle Sheypuk. Danielle is a renowned clinical psychologist with SMA who focuses her research on SMA and dating.

Jaksot(443)

Most Parents Surveyed in Japan Support SMA Newborn Screening

Most Parents Surveyed in Japan Support SMA Newborn Screening

SMA News Today’s multimedia associate, Price Wooldridge, discusses newborn screening for Spinal Muscular Atrophy (SMA) in Japan and it’s support by most parents surveyed. Plus, not only does the 31 D...

27 Elo 202111min

SMA Type 1 Affects Sensory Nerves as Children Age, Small Study Shows

SMA Type 1 Affects Sensory Nerves as Children Age, Small Study Shows

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) Type 1 affects sensory nerves as children age. Plus, Kevin Schaefer reads a column by Ari Anderson...

25 Elo 202110min

‘Best Possible Outcome’ for SMA? Newborn Screening, Then Zolgensma

‘Best Possible Outcome’ for SMA? Newborn Screening, Then Zolgensma

SMA News Today’s multimedia associate, Price Wooldridge, discusses the best possible outcome for infants with Spinal Muscular Atrophy (SMA) is newborn screening, then Zolgensma, according to a cost-ef...

23 Elo 20219min

Zolgensma Helps Mobility of SMA Children in Qatari Real-world Study

Zolgensma Helps Mobility of SMA Children in Qatari Real-world Study

SMA News Today’s multimedia associate, Price Wooldridge, discusses how the gene therapy Zolgensma helps improve mobility in young children with Spinal Muscular Atrophy (SMA) in a real-world study. Al...

20 Elo 202110min

FDA Lifts Hold on Clinical Trials of Intrathecal OAV-101 & Self-Acceptance and Rejecting Ableism

FDA Lifts Hold on Clinical Trials of Intrathecal OAV-101 & Self-Acceptance and Rejecting Ableism

SMA News Today’s multimedia associate, Price Wooldridge, discusses the FDA lifting its partial hold on clinical trials of Intrathecal OAV-101 for the treatment of Spinal Muscular Atrophy (SMA). Also,...

18 Elo 20216min

#88: SMA Awareness Month & 31 Days of SMA 2021

#88: SMA Awareness Month & 31 Days of SMA 2021

In episode 88, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and Katie Napiwocki. They discuss this year’s 31 Days of SMA campaign, as well as other topics and news ...

17 Elo 202147min

Zolgensma-Evrysdi Combo Likely Beneficial for SMA Type 1

Zolgensma-Evrysdi Combo Likely Beneficial for SMA Type 1

SMA News Today’s multimedia associate, Price Wooldridge, discusses how the Zolgensma-Evrysdi combination is likely beneficial for patients with Spinal Muscular Atrophy (SMA) Type 1. Also, DeAnn Runge...

16 Elo 20219min

Inviting People to Sit at the Table of My Disabled Life & 31 Days of SMA Thus Far

Inviting People to Sit at the Table of My Disabled Life & 31 Days of SMA Thus Far

SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Katie Napiwocki, A Wildflower in the Wheelderness, “Inviting People to Sit at the Table of My Disabled Life”. Also, as the...

13 Elo 20219min

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